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Lori Abrams has been a consultant for the past year and a half, helping Organizations accomplish representation in their clinical trials. This has been achieved by developing patient and community fo…

Lori Abrams has been…

Lori Abrams has been a consultant for the past year and a half, helping Organizations accomplish representation in their clinical trials. This has been achieved by developing patient and community focused Diversity Strategy Action Plans, incorporating the patient and caregiver’s voice into decision-making, and bringing tangible solutions to the visible and invisible barriers that prevent representative recruitment and retention.Her last role was Vice President of patient advocacy and clinical research diversity at WCG. Abrams and her team worked to ensure that each clinical trial enrolle…

Eric Fisher is a Candian certified counsellor with over 13 years experience working in inpatient and outpatient treatment environments. Originally from the US, Eric specializes in helping those with a…

Eric Fisher is a Can…

Eric Fisher is a Candian certified counsellor with over 13 years experience working in inpatient and outpatient treatment environments. Originally from the US, Eric specializes in helping those with addiction and Trauma. He operates his private practice, Recovery Arts Counselling, in Calgary, AB.

Based in Colorado, Risa August is an author, Speaker, Gestalt practitioner and Patient Advocate for rare pituitary diseases. She has been sharing her story for the past five years, and more recently i…

Based in Colorado, R…

Based in Colorado, Risa August is an author, Speaker, Gestalt practitioner and Patient Advocate for rare pituitary diseases. She has been sharing her story for the past five years, and more recently in her memoir The Road Unpaved – Border to Border with a Brain Tumor and a Bike. In addition to speaking at conferences for leaders in pharmaceuticals, medical professionals, and patients, her work is published on blogs and in other smaller publications. Her most popular personal essay, “Marshmallow Clouds,” has been translated into Spanish. Through her personal transformation, Risa has learn…

Dr. Rachna Rekhi is a board certified pediatrician and Lifestyle medicine physician. Prior to attending medical school she earned a degree in Food Science and Human Nutrition from the University of Fl…

Dr. Rachna Rekhi is …

Dr. Rachna Rekhi is a board certified pediatrician and lifestyle medicine physician. Prior to attending medical school she earned a degree in Food Science and Human Nutrition from the University of Florida. After university, she worked as a researcher in the Cardiology Department at Stanford University. She had aspirations of becoming a cardiologist until she attended medical school at McGill University in Montreal, Canada and had a revelation that many adult diseases begin in childhood. After that she focused her energy on becoming a pediatrician in hopes of influencing families to adopt hea…

Melanie Brooks is the author of the memoir A Hard Silence: One daughter remaps family, Grief, and faith when HIV/AIDS changes it all (Vine Leaves Press, 2023) and Writing Hard Stories: Celebrated Memo…

Melanie Brooks is th…

Melanie Brooks is the author of the memoir A Hard Silence: One daughter remaps family, grief, and faith when HIV/AIDS changes it all (Vine Leaves Press, 2023) and Writing Hard Stories: Celebrated Memoirists Who Shaped Art from Trauma (Beacon Press, 2017) She teaches creative nonfiction in the M.F.A. program at Bay Path University and in the M.F.A. program at Western Connecticut State University and professional writing at Northeastern University. She holds an M.F.A. in Creative Nonfiction from the University of Southern Maine’s Stonecoast writing program and a Certificate in Narrative Medici…

Megan-Claire Chase, aka Warrior Megsie, is a patient advocate and breast Cancer survivor from Atlanta, Georgia. Her blog, Life on the Cancer Train, is famous for being authentic, raw, and informative,…

Megan-Claire Chase, …

Megan-Claire Chase, aka Warrior Megsie, is a patient advocate and breast cancer survivor from Atlanta, Georgia. Her blog, Life on the Cancer Train, is famous for being authentic, raw, and informative, with a twist of humor, where she shares her experiences of being a young adult cancer survivor while advocating for better treatments and resources. The blog is syndicated on Cancer Health Magazine's website. Megan-Claire is a highly sought-after blogger and influencer in the cancer community nationally and internationally.In 2023, Megan-Claire was featured in Stories from the Stage episode "Be…

Joy Rios, MBA, stands as a distinguished Health IT strategist and a recognized expert in value-based care payment models. Celebrated for her pioneering spirit, Joy was awarded the 2023 HIMSS Changemak…

Joy Rios, MBA, stand…

Joy Rios, MBA, stands as a distinguished Health IT strategist and a recognized expert in value-based care payment models. Celebrated for her pioneering spirit, Joy was awarded the 2023 HIMSS Changemaker of the Year award for her significant contributions to women in health IT, underscoring her commitment to diversity, equity, and inclusion in the healthcare sector.As founder and host of the "HIT Like a Girl" podcast, and the Like a Girl Media agency, Joy is dedicated to elevating diverse voices and advancing DEI initiatives within healthcare. Her expertise not only bridges gaps between heal…

Sean Wachter's life is a remarkable narrative of resilience, determination, and transformation. After overcoming a life-changing accident, Sean faced a grueling health battle that led to the discovery…

Sean Wachter's life …

Sean Wachter's life is a remarkable narrative of resilience, determination, and transformation. After overcoming a life-changing accident, Sean faced a grueling health battle that led to the discovery of a golf ball-sized lesion in his cerebellum. Despite a challenging journey through misdiagnosis and the eventual confrontation with Stage 4 melanoma, including brain metastases and leptomeningeal disease, Sean's spirit remained unbroken.An accomplished former two-sport collegiate athlete and professional football player, Sean has channeled his relentless energy into professional wrestling, tu…

Nancy (she/her) is Breast Cancer Prevention Partners’ (BCPP) Director of Program and Policy and works at the state and federal levels to advance public policy to reduce exposures to toxic chemicals.…

Nancy (she/her) is B…

Nancy (she/her) is Breast Cancer Prevention Partners’ (BCPP) Director of Program and Policy and works at the state and federal levels to advance public policy to reduce exposures to toxic chemicals. Before joining BCPP, Nancy spent over 20 years in Washington DC advocating for numerous causes, including civil rights for women and the GLBTQ+ community. She graduated from the University of Pittsburgh with a Bachelor of Science in Biology and earned a Masters degree in Biological Oceanography from the University of Connecticut. Nancy is an avid outdoors person, spending her spare time hiking an…

Jade Gibson’s connection to cancer presented itself at the age of 16 when she was diagnosed with late-stage ovarian cancer. The experience ignited a desire to help individuals and families affected …

Jade Gibson’s conn…

Jade Gibson’s connection to cancer presented itself at the age of 16 when she was diagnosed with late-stage ovarian cancer. The experience ignited a desire to help individuals and families affected by cancer, leading her to pursue studies at the Harold P. Freeman Patient Navigation Institute. There she received Education on the newly developing field and learned how to apply the navigation model to eliminate common barriers for patients moving through the healthcare system.To date, Ms. Gibson has entered her 19th year of survivorship – lending her voice to address disparities that plague…

Denise’s career in healthcare began in a critical access hospital in Washington state and expanded to serve organizations large and small across the US. After working in non-profit and for-profit h…

Denise’s career in…

Denise’s career in healthcare began in a critical access hospital in Washington state and expanded to serve organizations large and small across the US. After working in non-profit and for-profit healthcare sectors and the last decade in patient experience, Denise is now working to Make a Ruckus That Makes a Difference in healthcare. She brings her expertise, passion for serving frontline leaders and employees, and entrepreneurial spirit to every conversation. Denise encourages those she works with to think differently, create synergistic collaborations, develop Relationships and connecti…

Dr. Winemaker is a graduate of McMaster University Medical School. She has completed residency training in Family Medicine, and fellowship training in Palliative Medicine. Her clinical work is predomi…

Dr. Winemaker is a g…

Dr. Winemaker is a graduate of McMaster University Medical School. She has completed residency training in Family Medicine, and fellowship training in Palliative Medicine. Her clinical work is predominately community based, caring for people in their home. She is an associate clinical professor at McMaster University in the Department of Family Medicine, Division of Palliative Care. She has held multiple leadership roles including McMaster Postgraduate Curriculum Lead, Hospice Medical Director, Regional Palliative Clinical Lead and Medical Lead Palliative Care Outreach Team. She is an active e…

Salih Hendricks is a South African Diabetes Amputee Advocate and shares his lived experience with many around the world on platforms like, DEDOC.org, WHO, IDF, Diabetes South Africa, Diabetes SA Advoc…

Salih Hendricks is a…

Salih Hendricks is a South African Diabetes Amputee Advocate and shares his lived experience with many around the world on platforms like, DEDOC.org, WHO, IDF, Diabetes South Africa, Diabetes SA Advocacy, American Limb Preservation Society, Bromley Diabetes UK Peer Support Group.He is a Board Member of Diabetes South Africa and South Africa Diabetes Advocacy. He does Peer Support and motivational talks on awareness and prevention of diabetes complications and amputations. He is always promoting diabetes education with awareness and prevention.https://www.instagram.com/salihhendricks/ https…

Passionate. Unique. Loyal. Resilient. These words are commonly used to describe Sharron S. Rouse. Sharron is an experienced leader with a demonstrated history of working in the education and nonprofit…

Passionate. Unique. …

Passionate. Unique. Loyal. Resilient. These words are commonly used to describe Sharron S. Rouse. Sharron is an experienced leader with a demonstrated history of working in the education and nonprofit industries. She is skilled in program coordination, leadership, community outreach, and curriculum development. A native of the Washington, DC Metropolitan area, she has dedicated her life to influencing the world as a kidney disease, dialysis, and now transplant survivor. Sharron actively shares her story to bring hope and healing to anyone facing difficult circumstances in life. In 2022, she st…

Dr Chrysopoulo ("Dr C") is a board certified plastic surgeon, breast reconstruction surgeon and microsurgeon, and President of PRMA Plastic Surgery in San Antonio, TX. Dr C is certified by the Am…

Dr Chrysopoulo ("Dr …

Dr Chrysopoulo ("Dr C") is a board certified plastic surgeon, breast reconstruction surgeon and microsurgeon, and President of PRMA Plastic Surgery in San Antonio, TX. Dr C is certified by the American Board of Plastic Surgery and is an active member of the American Society for Reconstructive Microsurgery (ASRM), and the American Society of Plastic Surgeons (ASPS) for which he has served on several breast reconstruction educational committees. He has authored and co-authored several book chapters and scientific articles in peer-reviewed journals on breast reconstruction-related topics, a…

Annie-Danielle Grenier raises awareness and advocates for rare diseases, living with a few herself.She mostly does this as a writer, public speaker and through her blog turned website: Ma vie de zè…

Annie-Danielle Greni…

Annie-Danielle Grenier raises awareness and advocates for rare diseases, living with a few herself.She mostly does this as a writer, public speaker and through her blog turned website: Ma vie de zèbre (My Zebra Life). Annie-Danielle launched Ma vie de zèbre in 2013 because she had difficulty finding information in French on hypermobile Ehlers-Danlos syndrome, her only rare diagnosis at the time, and what little she could find wasn't relatable to her province of Québec (Canada). She wanted to changed that! Annie-Danielle is very active as a patient partner, involved in many management, e…

Samira is a healthcare strategy and design leader who has incubated and operated numerous healthcare startups. She is the founder and CEO of Manta Cares Inc., a global community of caregivers and surv…

Samira is a healthca…

Samira is a healthcare strategy and design leader who has incubated and operated numerous healthcare startups. She is the founder and CEO of Manta Cares Inc., a global community of caregivers and survivors dedicated to transforming the cancer experience, a company that emerged from her experiences as a cancer survivor. Manta Cares designs and develops tools and resources that enable cancer survivors to regain control and peace of mind. As part of the Manta mission, she hosts the podcast Patient from Hell, which Spotify ranks within the top 10% of all globally shared podcasts.She is also a Ve…

Shruti Mitkus is the Director of Genetic Education and Navigation at Global Genes, a leading rare disease patient advocacy organization. Shruti is a human molecular genetics scientist and genetics edu…

Shruti Mitkus is the…

Shruti Mitkus is the Director of Genetic Education and Navigation at Global Genes, a leading rare disease patient advocacy organization. Shruti is a human molecular genetics scientist and genetics educator. She earned her doctorate in Human Genetics from University of Maryland Baltimore and completed her post-doctoral training at the National Institute of Mental Health, researching the genetic mechanisms of neuropsychiatric conditions such as schizophrenia and bipolar disorder. After working in many different areas related to genetics, such as basic research, pharmacogenomics, genetic diagn…