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How to keep your sensitive DNA information private

Dna-G267853D89_640Genetic testing, where a company examines your DNA, often from a saliva sample, and sends you a report about your family background or your likelihood for developing certain health conditions, is all the rage. It sounds like a great idea, but can you trust a company when it promises to keep your sensitive DNA data private?

Vitagene, a San Francisco-based DNA testing company, promised consumers that it exceeded industry-standard Security practices for maintaining the privacy of people’s sensitive health and genetic information. However, the Federal Trade Commission said the company didn’t keep that promise. It used a well-known cloud service provider to store people’s confidential information but didn’t use built-in cloud security measures. That made it possible for anyone with internet access to see the detailed health reports of nearly 2,400 consumers and raw genetic data of at least 227 others.

To settle the case, the company will carry out a comprehensive security program verified by a third party approved by the FTC.

If you’re considering using a DNA testing service, here are some things to consider, advises Jim Kreidler, consumer Education specialist:

  • Know that your DNA data is sensitive. There’s a law to protect you from discrimination based on genetic information when you’re trying to get work or health insurance. But that law doesn’t apply if you’re trying to get disability or long-term care insurance.
  • Do research. Read and understand the company’s “terms of use” before you buy. Who will have access to your data? How will the company protect your privacy and keep your genetic information safe?

Here are additional tips from Consumer Reports on what people should know about DNA testing:

Privacy policies can change. Companies can change their privacy policies at any time, although those changes can’t apply to previously collected data.

HIPAA doesn’t protect your data. It typically doesn’t apply to direct-to-consumer genetic testing companies. Another federal law does prevent employers and health insurance companies from using the results of a genetic test to discriminate against you, but not other entities or types of insurance companies.

Opt out of research. It can mean sharing everything you do on the service’s site, not just your DNA info.

Keep your DNA results off social media. Find a more secure way to share health information, including the results of DNA tests.

Consider deleting your data. If you’ve taken a direct-to-consumer genetic test, you may want to consider deleting your data.

Protect yourself from tracking. Many companies provide a way for consumers to block the company from tracking their activity using cookies. Select that option. Also, regularly clearing cookies is an important privacy habit. You can also use a service that protects your Internet activity from being tracked.

Again, it’s important to protect yourself as a consumer on this important issue.

Originally Published on https://boomersurvive-thriveguide.typepad.com/the_survive_and_thrive_bo/

Rita Robison Consumer & Personal Finance Journalist

For more than two decades, Rita R. Robison has been a consumer and personal finance journalist making her living by finding the best bargains, calling out the crooks, and advocating for regular people just like you and me. In that time, Robison has talked to so many people who feel like their money just isn’t getting them what they want, where they want to be, or the life they thought it would.

The purpose of her blog is to help you get what you want from your money. Robison covers financial goals, budgets, debt reduction, saving, smart choices for buying goods and services, and retirement planning. You’ll also find articles on safety, such as avoiding scams, looking out for rip off companies, and getting informed on the latest recalls.

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