Thousands of researchers, clinicians, people with and affected by PD descended upon Barcelona last week for the sixth annual World Parkinson’s Congress (WPC). It was my first and I was thrilled to take part. I’ll give a broad overview here – please know I could fill pages with more details as it was a deeply […]
Telling a sad sack story about Parkinson’s disease (PD) is boring. That’s what Michael J. Fox tells us in the first ten minutes of his new biographical documentary, Still (available on Apple TV+). He’s not only right, he’s showing all of us how to change the trajectory of PD: by telling our own heroic journeys, […]
This is a blended letter written from Susan Scarlett, beginning at the end of the 2021 Day One Superheroes program, and revised before the start of the 2023 Day One Parkinson’s Prison program. For more information on the Day One program, please visit: https://www.yesandexercise.org/about-3 Dear Day One PD Superheroes and fellow Parkinson’s Prisoners, I have […]
Written by YAX’s own First Follower, Susan Scarlett Prior to my diagnosis of Parkinson’s, I began to notice my handwriting shrinking. After my diagnosis, I learned that this phenomenon has a name – micrographia – and it is a very normal part of the Parkinson’s experience. In the years since then, my handwriting has become […]
Traveling is not easy for my dad, a 78-year-old man who was diagnosed with Parkinson’s disease (PD) in 2001. At the same time, him missing out or feeling that he is being left out, is something I’m so sensitive to that I’m willing to put in the effort to make sure he gets to participate […]
Our current medical system is brilliant at acute and emergency care. We have fantastic and dedicated practitioners, surgeons and specialists, amazing drugs, tools, and even precise robots which can treat, extract and connect us to technology in ways that save lives and give the opportunity for a greater quality of life. Yes, that’s all true […]
Here’s a snippet of our interview with Cole Galloway, PhD. His research Research focuses on physical rehabilitation for children. He is founder of the Go Baby Go program, which helps children and adults with physical and developmental disabilities move and explore the world. ROBERT: Hi Cole, how are you? COLE: Hey fellas and ladies. I’m […]
The following is the opening transcript from an interview with an awesomely inspiring Run Disney enthusiast who has been making and wearing amazing Disney-themed costumes on the courses for over ten years. For the whole episode, please click this link. Robert: Tell me about your history with run Disney. Cindy: For those of you who […]
Care partners play a vital role in the lives of their loved ones with PD. At the same time, there’s all too often a gap between them. Whether it’s communication, understanding experience or perspective-based, these disconnects can lead to significant problems. This is part of the reason I earned my PhD and developed the clinically-tested […]
The final long run of my marathon training was scheduled for twenty miles. I planned to do it on Friday, Dec. 16 in Walnut Creek, CA before heading down to Las Vegas for my graduation from my PhD program. Unfortunately, due to construction delays on a backyard project, I needed to stay close to home […]
