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November 16th, 2023

MARY LOU FALCONE: I Didn't See it Coming: Scenes of Love, Loss, and Lewy Body Dementia

  1. MARY LOU FALCONE: I Didn't See it Coming: Scenes of Love, Loss, and Lewy Body Dementia Mary Lou Falcone, Susie Singer Carter and Don Priess 1:01:45

My co-host , Don, and I have been blessed with so many amazing guests, but truth be told, our 81st guest, Mary Lou Falcone , ranks as one of our very favorites!! We fell in love with this EXTRAORDINARY woman and we have no doubt you will, too.

For over 50 years, Mary  helped guide the careers of celebrated artists – Van Cliburn, Gustavo Dudamel, Renée Fleming, Sir Georg Solti, James Taylor – and advised many institutions including Carnegie Hall, Chicago Symphony, Los Angeles Philharmonic, Philadelphia Orchestra, New York Philharmonic, Vienna Philharmonic. Then combining communication skills with her background as a performer and educator, she now adds another layer: advocate for Lewy body dementia (LBD) awareness.

Mary became a caregiver when her father had a massive Stroke. She was 10 years old. The experience prepared her for the day, many years later, when her husband, a world-renowned cartoonist, illustrator, painter, and 1950s rocker, Nicholas 'Nicky’ Zann, was diagnosed with Lewy Body Dementia (LBD).  Nicky, who died from LBD in 2020, was the catalyst for Mary's first book,  I Didn’t See It Coming: Scenes of Love, Loss, and Lewy Body Dementia.   

  “Mary Lou Falcone is an expert storyteller. After years of telling other people's stories, she now tells her own compelling story.” Friend and client, James Taylor.

In her memoir of love, loss, and Lewy body dementia (LBD), Mary Lou Falcone takes readers on a cathartic journey of Caregiving that is filled with hope, laughter, and tears, making stops along the way for music, romance, and surprises. Written to inspire and give hope, Mary Lou unflinchingly shares in detail her late husband’s struggle with LBD, providing informative, compassionate, and inspiring insights into dementia. As she emerges transformed and energized, so will you after reading I Didn’t See It Coming: Scenes of Love, Loss, and Lewy Body Dementia .

Learn about Lewy Body Dementia, why it is difficult to diagnose, and the special challenges faced by caregivers. Enjoy Episode 81!!
Love conquers alz,
Susie xo

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Susie Singer Carter Love Conquers Alz Podcast

Susie Singer Carter is a multi-award-winning writer, director, producer, actor, podcast producer, and host. A versatile filmmaker, Susie is best known for writing, directing, and producing the 2018 Oscar Qualified short film, MY MOM AND THE GIRL starring Valerie, writing and producing BRATZ THE MOVIE for Lionsgate, and co-producing SOUL SURFER for Sony. During a 3-script blind deal at Fox TV, Susie wrote, produced, and directed SURVIVING HAWKING, an adult animated pilot starring Brian Cranston and Adam Brody.

In the spring of 2024, Susie will direct the screenplay, RUN, a dramedy that she adapted from the book PLAIN JANE. Ms. Singer Carter also produces and hosts the podcast LOVE CONQUERS ALZ (BEST PODCAST 2020 New Media Film Festival/#4 on Feedspots’ 2023 25 Best Alzheimer’s Podcasts). Susie is also the co-creator, co-writer, and director of the horror/comedy narrative podcast I LOVE LUCIFER nominated for Best Audio Fiction 2023 Indie Series Awards.

Currently, Susie is producing the docu-series, NO COUNTRY FOR OLD PEOPLE, critically needed documentary inspired award-winning filmmaker, Susie Singer Carter's (Oscar Qualified “My Mom and The Girl” starring Valerie Harper, Soul Surfer) experience tackling the front lines of our broken Long Term Care/Nursing Home System while caring for her beloved mother who, despite best efforts, died July 17, 2022 from what was inarguably egregious nursing home neglect and abuse.

Susie really understands the power of storytelling. This film promises to pack a much-needed gut punch that will force the public to look at our health-care system that is literally collapsing around us. Susie has partnered with former US Prosecutor and Attorney General, Rick Mountcastle (portrayed in the Hulu miniseries, “DOPESICK”), who spent years investigating and prosecuting nursing homes chains for fraud. She has attracted an impressive list of the most respected and staunch advocates to contribute to the film. She and her partners are currently raising the remainder of the budget to finish the project. They are fiscally sponsored by The National Consumer Voice for Quality Long Term Care which provides them a 501(c)(3) status. Tax-deductible donations can be made here: http://act.theconsumervoice.org/documentary

Susie is a sought-after speaker and has appeared in many Alzheimer’s awareness campaigns for Alzheimer’s Los Angeles. She proudly emceed the 2022 San Fernando Valley Alzheimer's Walk and hosts the WGA’s 3rd & Fairfax Podcast.

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