Pippa Kelly is an award-winning dementia campaigner based in London. Host of the popular Well I Know Now dementia podcast, her articles have frequently appeared in the UK’s national press and she has her own website http://pippakelly.co.uk/. She also speaks publicly on old age, dementia and the power of stories to influence change. Her debut novel Invisible Ink, published by Austin Macauley, contains a small dementia thread based on her late mother who lived with the condition for over a decade, and is available from Amazon.
Recent Content
Suzy Webster is very special. She’s a mother, daughter, wife, and for many years carer to her mum, Barbara. In 2012, after Barbara developed dementia, she and Suzy’s dad, Gordon, came to live wi…
Suzy Webster is very…
Suzy Webster is very special. She’s a mother, daughter, wife, and for many years carer to her mum, Barbara. In 2012, after Barbara developed dementia, she and Suzy’s dad, Gordon, came to live with Suzy and her family in Chepstow. When I first met Suzy over a decade ago, I was struck by her quiet determination, her love for her family and her wonderful way with words. I can still remember her telling a conference that her parents had moved in with her and her family so that they could have “the dementia adventure together”. So simply put. Yet behind the phrase lay the endless res…
Kitty Norton describes herself as a former “just about everything – from non-profits arts administrator to cabaret performer to post-production professional to crappiest daughter of the year award…
Kitty Norton describ…
Kitty Norton describes herself as a former “just about everything – from non-profits arts administrator to cabaret performer to post-production professional to crappiest daughter of the year award-winner for more than forty years”. She forfeited that last accolade when, six years after her mum was diagnosed with vascular dementia, and following the sudden death of her dad, she gave up her job with NBC in Los Angeles to move back to Oregon so that she and her sister could provide their mum with the best possible dementia care. To get her through this unplanned turn in her career, Kitty …
This episode is dedicated to Tony Husband, who appeared on my show not once, but twice – which, in itself, is testament to the man’s generosity of spirit and dedication to raising awareness of dem…
This episode is dedi…
This episode is dedicated to Tony Husband, who appeared on my show not once, but twice – which, in itself, is testament to the man’s generosity of spirit and dedication to raising awareness of dementia. After Tony and I had recorded our first podcast, I said that, for me, Tony was all about creativity, humour and love, and I’d stand by that. “Life,” Tony once said, “is about laughing”. For the prolific cartoonist, that was absolutely true. He used his dark humour to investigate life’s paradoxes and frustrations, making the complex business of living seem simple. Throug…
Wendy Mitchell is quite simply one of the most impressive people I have ever met. Diagnosed with Alzheimer’s disease nine years ago at the age of 58, after an initial slump into Depression, Wendy h…
Wendy Mitchell is qu…
Wendy Mitchell is quite simply one of the most impressive people I have ever met. Diagnosed with Alzheimer’s disease nine years ago at the age of 58, after an initial slump into depression, Wendy has since devoted her time and precious energy to raising awareness of dementia, frequently appearing on our broadcast media – she’s a familiar face on the Breakfast Time sofas – and speaking at major conferences. Wendy’s blog, Which Me Am I Today remains one of my favourite reads and, in writing it, she’s created her own paper memory, something that has enabled her to produce two Sunday…
My two guests this week are passionate about improving life for people living with dementia, particularly through the Education and training of those who support and care for them. Dr Keith Oliver is…
My two guests this w…
My two guests this week are passionate about improving life for people living with dementia, particularly through the education and training of those who support and care for them. Dr Keith Oliver is an expert by experience – 13 years’ experience, having been diagnosed with Alzheimer’s in 2010, aged just 55 and forced to retire after 33 years in teaching, latterly as a headteacher. Prof Claire Surr, Professor of Dementia Studies and Director of the Centre for Dementia Research at Leeds Beckett University, has attracted global recognition for her research and leadership in dementia educ…
I am sure that many people listening to my podcasts will be aware of two ground-breaking medical breakthroughs that have occurred in recent months. These are the immunotherapy drugs Lecanemab and Don…
I am sure that many …
I am sure that many people listening to my podcasts will be aware of two ground-breaking medical breakthroughs that have occurred in recent months. These are the immunotherapy drugs Lecanemab and Donanemab, which is shown to have slowed the decline in memory and cognition of people with early stage Alzheimer’s disease by up to 40pc. These drugs do not, like others before them, merely mask the symptoms of Alzheimer’s, which accounts for over 60pc of all dementia cases – they modify the disease itself. They bind to the Amyloid plaque that builds up in the brains of those with Alzheimer…
In her native America, Lori La Bey has been recognised for her tireless work to improve the lives of those with dementia through creating, discovering and making accessible a wide range of resources.…
In her native Americ…
In her native America, Lori La Bey has been recognised for her tireless work to improve the lives of those with dementia through creating, discovering and making accessible a wide range of resources. She has been hailed as a Health Hero by none other than Oprah Winfrey and championed as an Architect for Change by the former First Lady of California, Maria Shriver.Since walking away from a successful career in Real Estate in 2009, Lori has launched America’s first radio station dedicated to dementia – indeed, Alzheimer’s Speaks is believed to be the first dementia radio station in the wo…
In this podcast I talk to two women who, in their different yet linked ways, have grown to appreciate the importance of identity, purpose and togetherness. The common theme isn’t dementia but bei…
In this podcast I ta…
In this podcast I talk to two women who, in their different yet linked ways, have grown to appreciate the importance of identity, purpose and togetherness. The common theme isn’t dementia but being the partners of military men – though never fear, dementia plays quite a part in our discussions as you will hear. Heather Sharp and her husband were both serving in the Army when, after having their two children, Heather made the difficult decision to leave. She didn’t know what to expect as a military wife and readily admits she had preconceived notions of coffee mornings and bridge. H…
Susie Singer Carter spent her childhood as a gymnast, an entrepreneur (selling her toys door-to-door), debate champion, party planner, flag twirler and cheerleader, while surviving her parents’ divo…
Susie Singer Carter …
Susie Singer Carter spent her childhood as a gymnast, an entrepreneur (selling her toys door-to-door), debate champion, party planner, flag twirler and cheerleader, while surviving her parents’ divorce and her father’s untimely death in a plane crash.While studying journalism at UCLA, she hosted a radio show, modelled and sang in a pop group produced by Chuck Lorre. After college, she opened a handmade jewellery store, acted in TV and film and then decided she wanted to create the projects. She worked in development, launched a production company, Go Girl Media, and wrote and produce…
I first met professional cellist Dr Claire Garabedian at a wonderful musical evening where three internationally renowned opera singers performed a piece written for audiences of older people and thos…
I first met professi…
I first met professional cellist Dr Claire Garabedian at a wonderful musical evening where three internationally renowned opera singers performed a piece written for audiences of older people and those with dementia.She spoke then of the powerful communication – the dialogue, conversation, connection – between the performers and audience members. It seems to me that throughout her extraordinary life Dr Garabedian, who was born and raised in America, has been connecting and inspiring people through music.Dr Garabedian has played with modern and Baroque orchestras in the USA, Japan and the …
Kate Lee, the chief executive of the Alzheimer’s Society, describes herself as a good Yorkshire girl, “What you see is what you get”. I last interviewed her in the dark days of December 2020 as…
Kate Lee, the chief …
Kate Lee, the chief executive of the Alzheimer’s Society, describes herself as a good Yorkshire girl, “What you see is what you get”. I last interviewed her in the dark days of December 2020 as people living with dementia in care homes became virtual prisoners, their relatives only allowed to see them through windows.Most of those with dementia, who account for over 70pc of care home residents, had no idea what was happening, why their loved ones no longer came to see them, they felt abandoned, alone, frightened. No one was more aware of this at the time than Kate, whose mum Barbara was…
Jean Lee is a retired American teacher from Ohio who, like me, is an Alzheimer’s Daughter. However, in Jean's case, both parents were diagnosed with dementia. And – and this is quite extraordina…
Jean Lee is a retire…
Jean Lee is a retired American teacher from Ohio who, like me, is an Alzheimer’s Daughter. However, in Jean's case, both parents were diagnosed with dementia. And – and this is quite extraordinary – they were both diagnosed on the same day. Jean is also, like me, a writer, and after her parents died she penned a memoir of her mum and dad, of their deep, lifelong love for each other and how they and their unbreakable bond weathered the tumultuous storms of dementia. Called Alzheimer’s Daughter, the book is at once a tender, highly personal account of one family’s experiences and a…
My guests today are Chris Maddocks and Rachel Thompson, two women who both know a lot about Lewy Body Dementia. Chris was diagnosed with vascular dementia six years ago at the age of 60. At the time…
My guests today are …
My guests today are Chris Maddocks and Rachel Thompson, two women who both know a lot about Lewy Body Dementia. Chris was diagnosed with vascular dementia six years ago at the age of 60. At the time she viewed it as a death sentence, but the Alzheimer’s Society saved her and when she became one of their ambassadors, she discovered hope and a renewed sense of purpose. Rachel is an Admiral Nurse, a dementia nurse supported by the charity Dementia UK, and she specialises in Lewy Body dementia. Although this form of the condition accounts for roughly ten to fifteen percent of cases, it is st…
I first interviewed Professor Sube Banerjee on my podcast in November 2020, when unbeknown to us, we were about to have our Christmas celebrations ambushed by Covid. Our chat was stimulating, thought…
I first interviewed …
I first interviewed Professor Sube Banerjee on my podcast in November 2020, when unbeknown to us, we were about to have our Christmas celebrations ambushed by Covid. Our chat was stimulating, thought-provoking, energetic and creative. It was also full of hope, just like him. In fact, I gave the podcast the title, The Professor of Hope, which many listeners loved. Sube Banerjee led the development of the UK’s first national dementia strategy in 2009. It constituted a huge step towards changing the way the condition is viewed by both Government and public. Over the next decade or so the …
Sage House is a dementia hub in Tangmere, West Sussex. Said to be the first of its kind in the UK, the hub is located in a light, airy building of dementia-friendly coloured zones, wide passageways, …
Sage House is a deme…
Sage House is a dementia hub in Tangmere, West Sussex. Said to be the first of its kind in the UK, the hub is located in a light, airy building of dementia-friendly coloured zones, wide passageways, Daisy’s café and numerous meeting rooms for everything from legal advice on drawing up wills and powers of attorney to hairdressing, from Citizens Advice Bureau sessions and dementia assessment clinics to Reiki. The hub provides a one-stop shop to give all the various services that someone diagnosed with dementia and his or her family might need. Crucially, they will also be allocated one p…
When Dame Barbara Windsor died in the dark Covid days of December 2020 the nation mourned the loss of not just an immensely talented and likeable actress, but a friend. We felt we knew this pocket dy…
When Dame Barbara Wi…
When Dame Barbara Windsor died in the dark Covid days of December 2020 the nation mourned the loss of not just an immensely talented and likeable actress, but a friend. We felt we knew this pocket dynamo, through her countless appearances, from her early days in the Carry On films to her later role as Peggy Mitchell in Eastenders, which she played for 20 years. We didn’t really know her of course, not the real Babs. But one man did. Scott Mitchell was 26 years younger than the love of his life. They met when he was 29 and she was 55 and married, and predictably, many thought the relatio…
When I last interviewed today’s guest for this podcast it was the summer of 2020 and we were cautiously emerging from our first lockdown. Back then, in July 2020, I said that I admired this young…
When I last intervie…
When I last interviewed today’s guest for this podcast it was the summer of 2020 and we were cautiously emerging from our first lockdown. Back then, in July 2020, I said that I admired this young mum from Chepstow for her understated determination, her strength of character and her obvious love for her family. Two difficult years on those words are truer than ever. Suzy Webster’s Covid experiences have been an intense, distilled version of many of ours. We’ve all had to adapt, to become used to a new norm all the while knowing that it wasn’t forever. For better or worse, familie…
Older people, says geriatrician Dr Lucy Pollock, are interesting. They are also boring, good-humoured, bad-tempered, serene, irritable, amusing, grouchy, selfish, generous, happy-go-lucky and nervy…
Older people, says …
Older people, says geriatrician Dr Lucy Pollock, are interesting. They are also boring, good-humoured, bad-tempered, serene, irritable, amusing, grouchy, selfish, generous, happy-go-lucky and nervy. “Older people are just all of us grown up”. Of course they are – so why can’t we all see that?It is in order to open up the conversation around old age, something we all reach if we are lucky enough and yet seem to shy away from, that Somerset-based Lucy has written her book, called – without ducking or diving – The Book About Getting Older, for people who don’t want to talk abou…