Dear Barbara, my mother suffered from dementia. She passed away in 2019. I was at her side and saw her take her last breath. Does a person with dementia know that she is dying? Neither of my sisters made it over before she died but I believe that she waited for them until the last […]
Dementia causing illnesses, by whatever name we classify them, are becoming more and more prominent. Dementia, and how to care for people with it, has become a big healthcare issue. Dear Barbara, my mother has FTD dementia. She is very vacant and stares through us all. She is unable to communicate, her muscles are contracting. […]
Dear Barbara, Some seniors seem to respond well to baby-talk. Some absolutely hate it. How do you know when to use baby-talk and when not to? When to use baby-talk while providing adult end of life care? NEVER. I find it hard to imagine anyone “liking” to be talked to as if they were a […]
I believe we have the right to be told about our disease, its progression, the options of care, and the probability of being cured vs. not cured. If it is not curable, what kind of quality can be expected? Being told we can’t be fixed gives us an opportunity to live until we die and […]
Dear Barbara, My husband was diagnosed with dementia.He has been under hospice care for over 2 years in a residential care home and has now entered EOL stage. Our hospice “service” in AZ focus solely on providing for the needs of my husband so I’m looking for resources to support me and our son. I […]
Dear Barbara, I have heard on a recent podcast that you did not have the best relationship with your mom. I would love to learn more about the strategies you used to keep grounded in the present, that allowed you to do the best caregiving of self plus your family unit plus your mom, minimizing […]
Dear Barbara, what do you think about a patient who has been in hospice for months. He has dementia. I thought when patient’s got on hospice they would die soon yet I hear there are patients here in this nursing facility that have been here a year or more. I heard a saying, “dementia patients […]
What would you do if your loved one was diagnosed with a life threatening or life ending illness? Where would you get your support? Where would you learn how to take care of them? End of life expert, Barbara Karnes, RN has created the tool that you would need–By Your Side, A Guide for Caring […]
This study was brought to my attention: A study of 117 nursing students examines their communication skills in having difficult conversations with patients near the end of life. Researchers noted one major theme: “delivering bad news is difficult.” Students expressed “fear, sadness, stress, feeling awkward, and a general lack of self-confidence in communicating bad news.” […]
I was thinking about life and living the other day——- what? doesn’t everybody? Anyway, I envisioned life as a line. Birth, living, dying, death is how life unfolds. We are born with labor to get into this world. We learn how to eat, to sleep, and to socialize as part of being alive. Then we […]
