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Send us a textSummary:In this episode of The Invisible Condition Podcast, Nate Toves from Neil Squire discusses the critical role of workplace inclusivity for individuals with disabilities. He emphasi…

Send us a textSummar…

Send us a textSummary:In this episode of The Invisible Condition Podcast, Nate Toves from Neil Squire discusses the critical role of workplace inclusivity for individuals with disabilities. He emphasizes the importance of disclosing barriers, rather than diagnoses, and highlights how employers have to provide accommodations. Nate explains the value of assessments and assistive Technology in tailoring solutions that meet individual needs and encourages employees to research available programs and funding to support these accommodations.Throughout the conversation, Nate shares positive experienc…

Send us a textImagine going through life without the ability to burp. You might think it’s no big deal but did you know, on average, we burp 10-20 times a day to release the air we take in?In this e…

Send us a textImagin…

Send us a textImagine going through life without the ability to burp. You might think it’s no big deal but did you know, on average, we burp 10-20 times a day to release the air we take in?In this episode, Henry shares his life with no-burp syndrome, also known as R-CPD. Henry talks about the physical and social challenges he faced, including countless doctor visits and misdiagnoses, until he finally found relief through an online community that led him to the right treatment.If you struggle with self-advocacy, this is for you! Henry talks about the importance of standing up for yourself in …

Send us a textImagine travelling halfway across the globe to learn about a treatment that would benefit your child. Endless research, countless unanswered questions, and the frustration of feeling lik…

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Send us a textImagine travelling halfway across the globe to learn about a treatment that would benefit your child. Endless research, countless unanswered questions, and the frustration of feeling like you're the only one fighting for solutions. How do you keep going when the healthcare system falls short?In this episode, Jess Dove London, founder of Turnto.ai, shares her journey in seeking effective treatments for her child with cerebral palsy. Jess discusses the challenges of navigating the healthcare system, the importance of accessing reliable health information, and how her app helps…

Send us a textWhat advice would you offer someone who is struggling to advocate for themself?What does it truly mean to advocate for yourself, and why is it often such a challenging journey? Living w…

Send us a textWhat a…

Send us a textWhat advice would you offer someone who is struggling to advocate for themself?What does it truly mean to advocate for yourself, and why is it often such a challenging journey? Living with Crohn's and arthritis has taught me the critical importance of self-advocacy, and through this journey, I've come to understand that demanding what you need is essential for personal well-being. In today's journal entry, I share my personal struggles and observations, offering a candid look into how self-advocacy has shaped my life. Listen as past interviewees like Leah Seth, D…

Send us a textHave you ever wondered how to successfully navigate the workplace with an invisible disability? Join us as we chat with Debbie Pearmain, an HR expert and leadership development coach, wh…

Send us a textHave y…

Send us a textHave you ever wondered how to successfully navigate the workplace with an invisible disability? Join us as we chat with Debbie Pearmain, an HR expert and leadership development coach, who shares her invaluable insights on self-advocacy and building trust with your manager.Learn practical strategies to communicate your challenges and propose solutions, ensuring that individuals with invisible conditions can excel professionally. Debbie also discusses the broader context of disability inclusion, stressing the importance of equitable treatment and the elimination of biases in workpl…

Send us a textWhat happens when the medical system fails to acknowledge your pain, and how do you find the strength to keep advocating for yourself? This episode promises an intimate and powerful conv…

Send us a textWhat h…

Send us a textWhat happens when the medical system fails to acknowledge your pain, and how do you find the strength to keep advocating for yourself? This episode promises an intimate and powerful conversation with Katie, founder of Revive and Thrive Coaching and host of "My Chronic Illness and Me" podcast. Katie takes us through her journey with endometriosis, where relentless self-advocacy became her lifeline amidst repeated dismissals by healthcare professionals. She shares the crucial role of finding a supportive community and how it transformed her experience from isolation to empowerment.…

Send us a textHey, it's Tim! Just wanted to share a bit about my recent adventures with Crohn's disease. So, I had a scope done recently and, surprise! Mild inflammation in multiple spots. Y…

Send us a textHey, i…

Send us a textHey, it's Tim! Just wanted to share a bit about my recent adventures with Crohn's disease. So, I had a scope done recently and, surprise! Mild inflammation in multiple spots. Yeah, it's a bit frustrating, but I'm choosing to stay hopeful. After all, it’s not severe, and that's a win!In this short episode, I talk about hope, scopes, advocacy, and developing a muffin recipe while on prednisone. Let me tell you about my “manic muffins” story. When I was on a high dose of steroids, I couldn’t Sleep. So, I started baking at 3 AM. My family eventually b…

Send us a textImagine being an elite athlete, outwardly thriving but internally battling major Depression, generalized Anxiety, and social anxiety. That’s the reality for our guest, Sophia Lim-Metz,…

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Send us a textImagine being an elite athlete, outwardly thriving but internally battling major depression, generalized anxiety, and social anxiety. That’s the reality for our guest, Sophia Lim-Metz, an 18-year-old who courageously opens up about her mental health journey. Sophia's story begins with an identity crisis after stepping away from hockey and navigating the mental health system post-suicide attempt in her grade 10 year. We bring light on the often unseen struggles and the critical importance of caregivers and support systems in her recovery.Sophia's brave decision to shar…

Send us a textCan chronic migraines and concussions be as debilitating as severe strokes or daily dialysis? In this episode, I sit down with Dr. Briar Sexton, a dedicated physician from British Columb…

Send us a textCan ch…

Send us a textCan chronic migraines and concussions be as debilitating as severe strokes or daily dialysis? In this episode, I sit down with Dr. Briar Sexton, a dedicated physician from British Columbia, to dive into the profound impact these invisible conditions have on quality of life. We explore the tough realities of diagnosing and managing chronic migraines, often overlooked due to their daily occurrence. Dr. Sexton shares her expertise on potential triggers, the value of keeping a headache diary, and the crucial need for self-advocacy to get the right diagnosis and treatment.We also tack…

Send us a textYou have your first few seizures and people tell you not to share your diagnosis of epilepsy because they are afraid for you. Afraid of the potential shame and discrimination you will fa…

Send us a textYou ha…

Send us a textYou have your first few seizures and people tell you not to share your diagnosis of epilepsy because they are afraid for you. Afraid of the potential shame and discrimination you will face. While this is well-intentioned, you do the opposite.In this podcast episode, we hear from Jon Tuteur, who shares his experiences of living with epilepsy after being diagnosed at 30. Jon talks about enduring over 500 seizures and undergoing three brain surgeries. Despite these challenges, he focuses on the positives that have emerged from his condition and emphasizes the importance of staying o…

Send us a textWhen was the last time you had a conversation with your colleagues, friends or family about suicide awareness and prevention?  Today’s episode has a content warning as my guest and I …

Send us a textWhen w…

Send us a textWhen was the last time you had a conversation with your colleagues, friends or family about suicide awareness and prevention?  Today’s episode has a content warning as my guest and I talk about a complex and serious topic - Suicide awareness and prevention. CONTENT WARNING: This episode contains some sensitive content as we talk about suicide.Years ago, someone close to me came to me and said they wanted to end their life. I wasn’t prepared for the conversation. Years later, the conversion plays in my mind. They are still with us and I am grateful for that.Tara Adams, found…

Send us a textIn this episode, I'm joined by Ally, who shares her firsthand experience with long COVID. Since her diagnosis, Ally has faced numerous challenges, from persistent symptoms that just…

Send us a textIn thi…

Send us a textIn this episode, I'm joined by Ally, who shares her firsthand experience with long COVID. Since her diagnosis, Ally has faced numerous challenges, from persistent symptoms that just won’t go away to major life changes that have reshaped her daily routine and long-term plans. We talk about the impact of long COVID on her life, including using a wheelchair and the ways she's had to adapt her environment and expectations.Despite these hardships, Ally brings an incredible amount of positivity to our conversation. She talks about finding hope and acceptance in her new real…

Send us a textHave you ever felt like the world just doesn't see you for who you truly are? In this episode, Lindsay shares her experience living with autism. Lindsay explains how she navigated …

Send us a textHave y…

Send us a textHave you ever felt like the world just doesn't see you for who you truly are? In this episode, Lindsay shares her experience living with autism. Lindsay explains how she navigated the challenges of being misunderstood and misdiagnosed until she found acceptance and began advocating for herself and others with autism. Her story is a powerful reminder that our differences should be celebrated, not just accepted.During our conversation, Lindsay talked about how music plays a role in her life, especially on difficult days. She finds that music helps manage her mood swings and a…

Send us a textAre you someone who turns your toughest challenges into a force for positive change, not just for yourself but for others too? How do you find the strength to advocate for yourself and a…

Send us a textAre yo…

Send us a textAre you someone who turns your toughest challenges into a force for positive change, not just for yourself but for others too? How do you find the strength to advocate for yourself and a more inclusive world, even when facing your invisible struggles?Manpreet lives with multiple concussions, Lyme disease and other invisible conditions. At a young age, she became focused on making an impact in this world and is doing just that. The founder of Veza Global, a Diversity, Equity, Accessibility, & Belonging consultancy, working with the UN, Manpreet is focused on impact.This episode ex…

Send us a textNick Koschnik, a physicist and business founder didn't let dyslexia hold him back. Instead, he turned it into his strength, creating StoriedWork.com to help others communicate their…

Send us a textNick K…

Send us a textNick Koschnik, a physicist and business founder didn't let dyslexia hold him back. Instead, he turned it into his strength, creating StoriedWork.com to help others communicate their thoughts and ideas.  We discuss how important it is to get help early on for dyslexia, and how great it is when people understand and accept everyone's unique way of thinking. Talking about why it's good to let people know you have dyslexia, how special reading programs can help, and how much difference a supportive friend, teacher, or leader can make.Nick shares his thoughts on stayin…

Send us a textWhen Sydney Elaine Butler speaks, you can't help but be drawn into the raw and transformative power of their voice. As the founder of Accessible Creates, Sydney lives with autism, C…

Send us a textWhen S…

Send us a textWhen Sydney Elaine Butler speaks, you can't help but be drawn into the raw and transformative power of their voice. As the founder of Accessible Creates, Sydney lives with autism, CPTSD, and fibromyalgia. Their conditions are not just a backdrop but a driving force behind their commitment to fostering disability-inclusive spaces. Their experiences bring hope, showcasing the balance between setting boundaries and leaning into self-care, all while pushing for change in professional settings that have for too long misunderstood and underserved those with invisible conditions.Ou…

Send us a textWhen the world demands high-speed living, can taking a moment to slow down help us speed up? Is there a root cause of anxiety and if so, what does that look like? Dr. Natasha Ghosh, a c…

Send us a textWhen t…

Send us a textWhen the world demands high-speed living, can taking a moment to slow down help us speed up? Is there a root cause of anxiety and if so, what does that look like? Dr. Natasha Ghosh, a clinical counsellor, shares how the pressures of society can amplify our stress and how recognizing what's in our control can ultimately support our mental state.Anxiety isn't just an individual struggle; it ripples through our families, affecting even the smallest members. As Dr. Ghosh and I share stories, we discuss how our coping mechanisms, from the foods we crave to the devices we ca…

Send us a textGrief is a journey that many of us face, making us feel alone even though it's a common experience. This week, Deanne shares her deeply personal story of dealing with major losses: …

Send us a textGrief …

Send us a textGrief is a journey that many of us face, making us feel alone even though it's a common experience. This week, Deanne shares her deeply personal story of dealing with major losses: the death of her aunt, a miscarriage, her child's hospital stay, and changing jobs, all happening in just 45 days. She opens up about the unique way she found comfort through her podcast, "F'ing Up."This episode dives into the personal nature of Grief and loss, highlighting that everyone handles it differently. We talk about the moments grief catches us off guard, challenging the idea th…