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After a 40 year hospice career, Barbara Karnes knows a thing or two about end of life care.  Today’s special episode is part 3 of our 4 part series in honor of National Family Caregivers Month and …

After a 40 year hosp…

After a 40 year hospice career, Barbara Karnes knows a thing or two about end of life care.  Today’s special episode is part 3 of our 4 part series in honor of National Family Caregivers Month and National Hospice and Palliative Care Month.  Barbara calls her introduction to working with the dying “divine intervention” that occurred because of a random connection with a hospice worker.  She spent five years working at the bedside, eventually moving into administrative positions and management.  As a hospice educator, she supports family caregivers and end of life workers alike. Hi…

Cuddle Cots and Cuddle Blankets allow families to spend more time with a loved one after a death,  providing an opportunity for end of life workers to do death care better.  Danielle Franck of Flexm…

Cuddle Cots and Cudd…

Cuddle Cots and Cuddle Blankets allow families to spend more time with a loved one after a death,  providing an opportunity for end of life workers to do death care better.  Danielle Franck of Flexmort shares her personal experience with a Cuddle Cot in this interview.  *Warning - This episode contains a description of the loss of a stillborn infant. It may not be for all listeners. Please take care of yourself.Danielle is the Business Development Executive of the US at Flexmort, a company that designs and manufactures flexible mortuary solutions for the storage and cooling of a body afte…

In episode two of our special four part series, hospice icon Barbara Karnes shares what it was like working in hospice in the early days, before there was a model for working with the dying. Barbara h…

In episode two of ou…

In episode two of our special four part series, hospice icon Barbara Karnes shares what it was like working in hospice in the early days, before there was a model for working with the dying. Barbara has worked in end of life care for over 40 years, educating and supporting end of life workers and family caregivers alike.  In this conversation, we talk about what hospice work was like early in her career.Here are some highlights from this episode:Barbara shares how they cared for patients, learning how people die and the best ways to care for them.Barbara talks about how other disciplines …

When his dad died, Adam Zuckerman created a highly organized kit for managing his Estate.  As founder of Buried in Work, he helps people get their end-of-life preparation in place.  Adam’s family …

When his dad died, A…

When his dad died, Adam Zuckerman created a highly organized kit for managing his estate.  As founder of Buried in Work, he helps people get their end-of-life preparation in place.  Adam’s family learned the ins and outs of hospice as they supported his dad at the end of his battle with leukemia.  Although their time using hospice care was short, Adam saw the benefits of end of life care first hand.Adam's mission is to empower individuals of all ages to navigate the intricacies of estate planning with confidence and ease. Through Buried in Work, he seeks to revolutionize the way people …

In honor of National Hospice and Palliative Care Month - and National Family Caregivers Month - we’re featuring a special 4-part series with special guest Barbara Karnes, Hospice Nurse and End of Li…

In honor of National…

In honor of National Hospice and Palliative Care Month - and National Family Caregivers Month - we’re featuring a special 4-part series with special guest Barbara Karnes, Hospice Nurse and End of Life Educator.  In the first episode of the series, Barbara shares how she got started in end of life care back before the Medicare hospice benefit was established in the 1980’s.Here are some highlights of this special episode:Barbara thinks she should have been a social worker but her mother talked her into Nursing.She and her fellow hospice nurses learned how to provide their own self care …

Death educator Lee Warren believes preparing for death in advance makes a good death possible. Over a period of two years, she experienced several deaths in her small community of 125 people, teach…

Death educator Lee W…

Death educator Lee Warren believes preparing for death in advance makes a good death possible. Over a period of two years, she experienced several deaths in her small community of 125 people, teaching her the best lessons about death as she cared for them.  Those deaths, and the generous people who experienced them, offered an incredible opportunity for Lee to reweave a more holistic approach to end-of-life than the one generally offered to us in the U.S.  The outcome of stewarding those deaths together as a community,  including after-death care, home funerals, and home burials, was …

Serious illness and Caregiving can be isolating. GrandPad’s AI Technology keeps seniors safely connected to loved ones. Isaac Lien and his dad Scott co-founded GrandPad to meet the needs they saw i…

Serious illness and …

Serious illness and caregiving can be isolating. GrandPad’s AI technology keeps seniors safely connected to loved ones. Isaac Lien and his dad Scott co-founded GrandPad to meet the needs they saw in Scott’s mom. Their new AI app Grandie offers audio interaction for the user without requiring a certain format, and even learns the user’s voice and way of speaking. Because GrandPad’s network is private and encrypted, users can share photos or videos and make video calls without worrying about robocalls or spam. No one can be part of a user’s network unless they’re been invited by …

Virginia Marcolin’s background in fashion and textiles led her to start designing burial shrouds, experimenting with luxurious natural fabrics and vegetable dyes. The result was Sanctum, a brand of…

Virginia Marcolin’…

Virginia Marcolin’s background in fashion and textiles led her to start designing burial shrouds, experimenting with luxurious natural fabrics and vegetable dyes. The result was Sanctum, a brand of high-end scented burial shrouds for the natural funeral industry. Virginia sources a variety of high-quality organic fabrics which are soft to the touch and biodegradable. Fabrics are colored with non-toxic plant dyes and infused with a proprietary plant-based antibacterial formula, which inhibits germ Growth and neutralizes malodor. The result for families is a comforting, beautiful, aromati…

My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a residential hospice home, and why she stays in this industry.  #hospice #endoflife #death #…

My guest Susan Hearn…

My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a residential hospice home, and why she stays in this industry.  #hospice #endoflife #death #dying #caregiver #caregivinghttps://pod.co/the-heart-of-hospice-podcast/quality-care-is-the-goal-at-residential-hospice-homesResidential hospice homes provide compassionate caregiving support for the dying. My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a hospice home, and why she stays in this industry.  Susan has a passion for se…

The last conversation you want to have shouldn’t be the last one you do have.  Filmmaker Johanna Lunn is using her lifelong curiosity about death to bring documentaries about "What happens when we …

The last conversatio…

The last conversation you want to have shouldn’t be the last one you do have.  Filmmaker Johanna Lunn is using her lifelong curiosity about death to bring documentaries about "What happens when we die," to life. She’s the co-founder of the When You Die Project which hosts a resource-rich website, podcast, and documentary trilogy.   The When You Die Project is here to facilitate a cultural dialogue most often avoided — one that begins at the end. From existential afterlife questions such as “What happens when you die?” to palliative care, and the nuts and bolts of preparing for…

Rosanne Corcoran, host of Daughter the Podcast is sharing her best advice about being a caregiver for a person dealing with dementia. As caregiver to her mother for 12 years, Rosanne learned how to na…

Rosanne Corcoran, ho…

Rosanne Corcoran, host of Daughter the Podcast is sharing her best advice about being a caregiver for a person dealing with dementia. As caregiver to her mother for 12 years, Rosanne learned how to navigate the healthcare system as an advocate, deal with Sleep deprivation, and to care for herself along the way.Rosanne Corcoran is the creator and host of Daughterhood the Podcast.  She is also a Daughterhood Circle leader and their Director of Content.  She cared for her mother through her journey with vascular dementia, starting as a supportive caregiver to an in-home sandwich caregiver for…

Hospice nurse and End of Life Doula Gabby Jimenez of The Hospice Heart is our guest host for today’s episode, featuring a discussion of Hospice Navigation Services. When you’re looking at making d…

Hospice nurse and En…

Hospice nurse and End of Life Doula Gabby Jimenez of The Hospice Heart is our guest host for today’s episode, featuring a discussion of Hospice Navigation Services. When you’re looking at making decisions about end of life care for yourself or someone you love, things can seem frightening and confusing. Hospice Navigation Services can help you figure things out.  We can help you feel just a little less lost.  Hospice Navigation Services was founded by Hospice and Palliative Certified RN Helen Bauer, a respected voice in the end of life industry.  Helen acts as Lead Navigator for Hosp…

Hospice and palliative physician Dr. Matthew Tyler is teaching us how to have conversations with your healthcare team about what matters most to you. In addition to his work as medical director of pa…

Hospice and palliati…

Hospice and palliative physician Dr. Matthew Tyler is teaching us how to have conversations with your healthcare team about what matters most to you. In addition to his work as medical director of palliative care services, Matthew educates the public about having meaningful discussions with their healthcare teams, especially the doctor. He calls it “How to Train Your Doctor”. People with serious illnesses, along with their decision-makers, can get better care if they know how to communicate their needs.Matthew tackles some of the trickiest topics with his How to Train Your Doctor soci…

Being an advocate for someone in hospice care is a big job. MSW Jacob Kendall of Demystifying Healthcare is teaching us how to do it well. Advocacy for his own healthcare needs has taught him how to…

Being an advocate fo…

Being an advocate for someone in hospice care is a big job. MSW Jacob Kendall of Demystifying Healthcare is teaching us how to do it well. Advocacy for his own healthcare needs has taught him how to communicate with a healthcare team to get the best care possible. Jacob teaches about the various aspects that influence that care that’s available for patients, including time and communication. He’s also looking from a 30,000 foot view as well, acknowledging that geography, poverty, time, and policies influence the kind of care we receive.Jacob is a fan of interdisciplinary care. He be…

As co-founder of Empowered Endings, Dr. Bob Uslander, is working to shift the paradigm of End of Life Care by supporting, guiding, and teaching an empowered approach to Palliative and End of Life Care…

As co-founder of Emp…

As co-founder of Empowered Endings, Dr. Bob Uslander, is working to shift the paradigm of End of Life Care by supporting, guiding, and teaching an empowered approach to Palliative and End of Life Care.  He became aware of the gaps in hospice and palliative care that cause patients to struggle.  The deaths of his parents and a dear friend provided a personal perspective into caregiving that formed Bob’s determination to meet the needs of people with serious illness in a better way.  Empowered Endings supports both patients and families through the final stages of life.  Bob, his wife M…

In part 2 of our grief series with Grief Coach Shelby Forsythia, Shelby talks about identifying your grief allies, different grief styles, and how to create continuing bonds with the ones you’ve los…

In part 2 of our gri…

In part 2 of our grief series with Grief Coach Shelby Forsythia, Shelby talks about identifying your grief allies, different grief styles, and how to create continuing bonds with the ones you’ve lost.  As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey.  Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher.  Shelby’s work has been featured in Huffington Post, Bustle, and The Oprah Magazine.  Her heart and compa…

Grief Coach Shelby Forsythia is teaching us how it’s possible to grow through grief.  As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to…

Grief Coach Shelby F…

Grief Coach Shelby Forsythia is teaching us how it’s possible to grow through grief.  As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey.  Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher.  Shelby’s work has been featured in Huffington Post, Bustle, and The Oprah Magazine.  Her heart and compassion is palpable in her book Your Grief, Your Way. Connect with Shelby Forsythia:Website: https://www.shelbyfo…

Dementia practitioner Mary Anne Oglesby-Sutherly is on a mission to transform the landscape of dementia care.  As co-founder of Veranda Ministries, a 501(c)3, Mary Anne has spent two decades telling …

Dementia practitione…

Dementia practitioner Mary Anne Oglesby-Sutherly is on a mission to transform the landscape of dementia care.  As co-founder of Veranda Ministries, a 501(c)3, Mary Anne has spent two decades telling the stories of people dealing with dementia.  Supporting dementia caregivers is her gift, and helping them to remember their person’s Legacy is a top priority.  Mary Anne got her start as a family practice nurse, and is now a Certified Dementia Practitioner as well as holding a triple certification as a PAC trainer, consultant, and coach in Teepa Snow’s “Positive Approach to Care” (PA…