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Barbara Karnes

Using Palliative Sedation At End of Life

Dear Barbara, Will you discuss palliative sedation? Palliative sedation is a term used by hospice, palliative care, and medical professionals to describe giving large doses of sleep-inducing medications to induce unconsciousness. It is a pain management technique used when all other pain management options have been unsuccessful. It is not routinely used. I would even say […]

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It’s Okay Not To Eat! Food At End of Life

FOOD! We eat to live. It sustains living. Everyone and everything needs some form of food, of nourishment, to maintain life. Animals (and that includes humans), plants, insects, all need some form of food to live. It seems that with humans, we add to the nourishment aspect of eating a social component as well as […]

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How Do You Train Your Hospice Volunteers?

I was thinking about hospice volunteer training. What makes a good training program? I am hearing stories about the lack of professional staff training for new hires, which led me to wonder about volunteer training.  So—here are my thoughts for a hospice volunteer training program: At the first meeting of the training, have a discussion […]

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Keep No Secrets From Those at End of Life

I hear “don’t tell mom” way too frequently. Mom has a life threatening illness or may even be showing signs of approaching death and her family says to me as I walk in the door, “don’t tell mom.”  They  want to protect her. They don’t want to worry her or scare her. SO everyone is […]

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“I’m Fine,” The Universal Response From Grievers

In response to “how are you,” “I’m fine” seems to be a universal reply from people suffering. This suffering can be the result of pain, grief, illness, family upheaval, or any other major distress a person is experiencing. Well, my mother would have told you everything and more than you’d ever want to know in response […]

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None of Us Really Knows When Death Will Come

There is no “if” in dying – only “when.” Yet we act like (and/or pretend) we will live forever. We make no advance directive and assign no power of attorney or durable medical power of attorney. We don’t tell others our thoughts or wants regarding the ending of our lives. We don’t prepare others close […]

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The Maps We Need to Care For the Dying

“You can’t use an old map to explore a new world.” ~Albert Einstein       Taking care of someone at end of life is different from taking care of someone who is going to get better. The challenge is that most people, including healthcare professionals, don’t know this. Most use “old maps to explore this […]

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Adjusting After Our Person Has Died

We think of grief as mourning, of our emotional reaction to a loss. The tears, the “I miss her so much,” the sadness she is no longer with you. Grief is sadness. For some, it may be a relief that someone or something is no longer a part of our life.  We don’t just grieve […]

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