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November 22nd, 2023 Mature Content

DBS: I Helped Surgeons Operate on my Brain

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  1. DBS: I Helped Surgeons Operate on my Brain Curiouscast 51:48

In this episode of “When Life Gives You Parkinson’s,” Larry and Rebecca dive into Larry’s recent Deep Brain Stimulation (DBS) surgery. It’s the culmination of their DBS series, showcasing moments before and after the procedure. (Episode six of our 2023 DBS series)

Larry shares his experiences, from the anticipation of the surgery to post-surgery reflections. He describes the fears he had about the head frame and the surgical process itself, emphasizing the involvement of Nurse Nancy and Dr. Honey. The detailed account covers the electrode installation, the testing of potential targets for relief, and the moments of Consciousness during the surgery.

Post-surgery, Larry discusses the “Honeymoon” period, a phase of initial relief and remarkable changes. He talks about the reduction in medication intake, improved bodily functions, and sensory experiences like regaining his sense of smell. Despite these positive changes, he notes signs of needing to gradually reintroduce medication as he experiences disorientation and fatigue.

Larry and Rebecca conclude with observations of minor personality changes and a heartfelt conversation about what comes next.

It’s a personal, insightful episode that offers a firsthand account of the realities and changes that come with DBS surgery for Parkinson’s Disease.

 

MAIL Larry and Rebecca: ParkinsonsPod@curiouscast.ca

Have a topic or questions that you would like Larry & Rebecca to address on a future episode?

We would love you to click here and leave a message  https://www.speakpipe.com/WhenLifeGivesYouParkinsons

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Twitter: @ParkinsonsPod

Thanks to Curiouscast

Our Presenting Partner is Parkinson Canada. Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.

Additional thanks to… 

PD Avengers – We are building a global alliance to end Parkinson’s. Join us

Larry Gifford When Life GIves You Parkinson's Podcast

Larry Gifford has Parkinson’s disease and he wants to talk about it. When Life Gives You Parkinson’s chronicles Larry’s journey following diagnosis at age 45, but he knows he’s only part of the story. The podcast gives voice to the fascinating people that make up the Parkinson’s community and beyond — his wife and partner in Parkinson's Rebecca co-hosts the podcast.They approach life with PD with humour and heart to heart conversations. Along the way they introduce other PwP, care partners, advocates, researchers and healthcare providers. Through these interviews, the podcast informs and inspires others to share their own stories revealing the challenges and growth offered by the Parkinson’s journey.

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