Living with Courage and Hope
- Living with Courage and Hope Michele Simms 32:30
In this episode of ‘The Beauty In The Mess,’ we sit down with Christa Gagnon, a rare disease advocate and founder of Going with the Gagnons. Christa shares her transformative journey after her daughter, Jordan, was diagnosed with Giant Axonal Neuropathy (GAN), a terminal illness. She discusses the challenges of living with a terminal genetic condition, the stages of Grief, and how she and her family navigate life day by day. We also learn about Jordan’s dreams, their joint clothing line, and the importance of community and advocacy.
Christa Gagnon is a woman who wears many hats. Being blessed with a daughter with a terminal illness has shaped the trajectory of her career and passions. Her daughter is her world and she is on a mission to bring awareness and find a cure. She is an advocate and knows the importance of her voice. She has been an entrepreneur and business owner for the past 20 years and just recently stepped into the nonprofit space as a brand manager. It is Christa’s goal to create community and bring people together. She shares her experience with the pain and grief that comes with being a caregiver to help others know they are not alone. She is excited that she has reached the portion of her life where she is able to give back and help others.
02:10 Introduction
02:16 Krista’s Mission
02:36 Stages of Grief
02:41 Journey to Diagnosis
03:01 Living with GAN
03:41 Raising Jordan
03:52 Daily Life and Acceptance
07:48 Diagnosis Impact on Family
12:31 Jordan’s Dreams and Projects
22:08 Support and Advocacy
23:51 Clothing Line and Affirmations
27:53 Words from Jordan
30:22 Contact and Follow
Connect with Christa Gagnon:
Let’s Connect!
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