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Parkinson's Warrior: Turning Pain into Purpose Through Advocacy

  1. Parkinson's Warrior: Turning Pain into Purpose Through Advocacy JJ, Natalie, and Emilie 52:18

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George Ackerman shares his personal caregiving journey caring for his mother, Sharon, who battled Parkinson's disease for 15 years. As a New York native turned Florida resident, George came from a background of success as a lawyer and police officer. However, when his mother's Parkinson's progressed and she needed more support, George stepped up to become her primary Caregiver. 

He faced many challenges in caring for his mother, from managing her hallucinations and dementia to struggling to find trustworthy in-home caregivers. Throughout it all, George found purpose in advocating for others affected by Parkinson's through the foundation he started called Together for Sharon. Even after losing his mother, George continues fighting to support those diagnosed with Parkinson's, their caregivers, and others who have lost loved ones to the disease. He shares his story openly to raise awareness of the challenges of male caregivers and hopes to be a voice for those who feel unseen in their caregiving journeys.

About George:

Dr. George Ackerman (Sharon’s son) is from Brooklyn, N.Y. Now residing in Florida, he works in the fields of law, police, and education. George lost his mother, Sharon Riff Ackerman on 1/1/2020 due to Parkinson’s Disease. 

George wanted to honor his mother and continue to help in the Parkinson’s awareness cause, but he did not know how to bring about change. We started TogetherForSharon® as a family to keep my mother, Sharon Riff Ackerman, ’s memory alive and share the message of Parkinson’s Awareness and hope for a cure.

Today https://www.togetherforsharon.com/ reaches thousands of individuals across the country for PD Awareness. George currently interviews individuals throughout the Parkinson’s community including various foundations, caregivers, and Parkinson’s warriors to help share their stories and causes. 

Connect with George:

Websitehttps://www.togetherforsharon.com/

Emailtogetherforsharon@gmail.com 

LinkedIn   https://www.linkedin.com/in/george-ackerman-ph-d-esq-mba-00871a82/ 

TikTokhttps://www.tiktok.com/@togetherforsharon1

Facebookhttps://www.facebook.com/togetherforsharon112020

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JJ Elliott Hill Confessions of a Reluctant Caregiver

Known since childhood as “The Elliott Girls” or simply, “The Girls”, it makes sense that we work together to support our mother, and each other. Our trio begins with Jenefer Jane “JJ” who was and always will be “in charge”. She’s the peacekeeper. The responsible one, ensuring Natalie and Emilie remain alive. Next is Natalie, the middle child, who was and always will be Miss Congeniality. She’s the athlete. The rebel responsible for three babysitters exiting the summer of ’84. Then there is Emilie, the youngest, who was and always will be “the baby”. At 6’1”, she is the sensitive and quiet soul. The one responsible for the guinea pig that begged for lettuce and the stray dog we adopted from the bus stop.

After high school we went separate ways, from New Mexico to North Carolina. JJ would go on to get her Master’s in Business Administration and work in the finance world before partnering with her now husband, Dexter, to run a variety of businesses. Natalie would go on to get her Master’s in Social Work degree, and work in the mental health field, advocating for children and families to receive the most appropriate services. Natalie would marry and divorce early on but later marry Jason. Emilie would exit college early to marry and gift us with Owen and twins, Maxx and Natalie Jane aka “The Kids”. Emilie would later divorce and work with county government, focusing much time on caring for the kids.

The source of the sisterhood falls to Jim aka “Big Jim” and Connie, small town high school sweethearts married for almost 40 years.

In 2005, at the age of 52, mom would be diagnosed with Parkinson’s Disease. She hid the disease for years behind dad’s 6’2” frame. The tremors and sudden inability to move were both calmed and steadied by his arm and simple presence. He was her rock. Our rock. Close family and friends knew of her chronic illness, but to the rest of the world, everything was “fine”. Life would turn upside down when our dad unexpectedly passed in 2011 of a massive heart attack at the age of 58. The assumption was Dad would always be mom’s caregiver but that wasn’t God’s plan.

Mom would spend the years following our father’s death desperately seeking a cure for Parkinson’s while trying to manage her symptoms. As the years went by, the cruel symptoms associated with the disease increased, negatively impacting her body while her mind remained clear and in tune. We lived our lives checking in to make sure she was “okay” but knowing the day would come when we had to do more. And then it did. The summer of 2019 changed everything. That’s where the real caregiver story begins for us. Little did we know she would be only the beginning of our caregiving journey.

In March 2022, Natalie’s husband, Jason, was diagnosed with head and neck cancer. From the first time Jason detected something off about the swollen lymph nodes in his neck, to the formal diagnosis, and the decision to move to New York City to participate in a clinical trial at Memorial Sloan Kettering Cancer Center, the journey would push them to their limits. The silver lining of his diagnosis was the cancer brought them closer to God, restoring their faith in Him while also experiencing a myriad of blessings through the kindness of family, friends, and strangers. Their story is a testimony that will inspire and offer hope.

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