Written by YAX’s own First Follower, Susan Scarlett Prior to my diagnosis of Parkinson’s, I began to notice my handwriting shrinking. After my diagnosis, I learned that this phenomenon has a name – micrographia – and it is a very normal part of the Parkinson’s experience. In the years since then, my handwriting has become […]
Traveling is not easy for my dad, a 78-year-old man who was diagnosed with Parkinson’s disease (PD) in 2001. At the same time, him missing out or feeling that he is being left out, is something I’m so sensitive to that I’m willing to put in the effort to make sure he gets to participate […]
Our current medical system is brilliant at acute and emergency care. We have fantastic and dedicated practitioners, surgeons and specialists, amazing drugs, tools, and even precise robots which can treat, extract and connect us to technology in ways that save lives and give the opportunity for a greater quality of life. Yes, that’s all true […]
Here’s a snippet of our interview with Cole Galloway, PhD. His research Research focuses on physical rehabilitation for children. He is founder of the Go Baby Go program, which helps children and adults with physical and developmental disabilities move and explore the world. ROBERT: Hi Cole, how are you? COLE: Hey fellas and ladies. I’m […]
The following is the opening transcript from an interview with an awesomely inspiring Run Disney enthusiast who has been making and wearing amazing Disney-themed costumes on the courses for over ten years. For the whole episode, please click this link. Robert: Tell me about your history with run Disney. Cindy: For those of you who […]
Care partners play a vital role in the lives of their loved ones with PD. At the same time, there’s all too often a gap between them. Whether it’s communication, understanding experience or perspective-based, these disconnects can lead to significant problems. This is part of the reason I earned my PhD and developed the clinically-tested […]
The final long run of my marathon training was scheduled for twenty miles. I planned to do it on Friday, Dec. 16 in Walnut Creek, CA before heading down to Las Vegas for my graduation from my PhD program. Unfortunately, due to construction delays on a backyard project, I needed to stay close to home […]
Blog #2 on my first marathon training One of the things I really enjoy about long runs (anything over six miles starts feeling long to me right now) is getting a little lost or at least feel like I’m a fair distance from home. I like to go out in one big loop, making sure […]
I came across the phrase, “the story I’m telling myself” in Brene Brown’s “Rising Strong”. She operationalizes it to identify her emotional state during a disconnect with her husband, Steve. It is a powerful, vulnerable, and courageous demonstration. I highly recommend reading her work and watching her share this work so you can employ it […]
Whenever I mention what I call “The YAX Factor” to people who have played improvisation with Robert Cochrane, they all know what I mean. For the uninitiated, YAX stands for Yes, And eXercise, a fun new online improvisation program for people with Parkinson’s (PWP), care partners and anyone serving or involved with the PD community. […]
