We think of grief as mourning, of our emotional reaction to a loss. The tears, the “I miss her so much,” the sadness she is no longer with you. Grief is sadness. For some, it may be a relief that someone or something is no longer a part of our life. We don’t just grieve […]
Where does someone go who doesn’t have anyone to care for them as end of life approaches? Most people, when told they can’t be fixed, believe they will stay at home, alone if necessary, and die in their own bed. Unfortunately, as death approaches none of us will be able to take care of ourselves. […]
For many people, nursing facilities have become their home. It is therefore reasonable that Hospice services be available in facilities. BUT care in a facility is not the same as care in the home. Here are some of the differences—and challenges. Nursing facilities’ focus, by regulations, is to keep people alive. All the care is […]
Sometimes our patients and families don’t want to hear the words “hospice” or “end of life care.” I have been asked, “should we use words that are more sensitive?” I don’t think so; I don’t think we need to use other words to be more sensitive to end of life issues. This seems to be […]
We talk about a Durable Medical Power of Attorney and how important it is to make our end of life wishes known. If we don’t legally make our wishes known in writing and generally notarized, healthcare professionals will make those decisions for us. Those decisions will be to try to start our heart when it […]
It has been almost six months since my husband of 62 years died. As an end of life educator I have taught about loss and grief, and even written a booklet about it. BUT what I didn’t really understand were the emotional thoughts and feelings of grief. I couldn’t and didn’t understand because I had […]
If you look at a person from a healthy perspective you see the need for food, sleep, and socialization. We eat to live. Sleep to revitalize. Interact with others for stimulation. If the body is preparing to die, the reverse is the norm. We gradually stop eating. We begin sleeping more. We begin withdrawing from […]
Dear Barbara, What suggestions do you have in overcoming the changes we see in hospice and healthcare today? It doesn’t look like it did 20 years ago. How do we maintain balance while keeping patients centered? Hospice originated outside of the medical model. It met needs the medical establishment did not. Gradually, ever so slowly, […]
Dear Barbara, We have heard the terms “compassion fatigue” and “caregiver burnout.” Today, after covid, it is being called “beyond burnout.” What are your thoughts about this? Doesn’t it feel like the world has sped up? Everything is so intense these days. That energy affects us all on many levels. Our minds and our feelings […]
Being in a relationship is about sharing and compromise. It is “let US do this, what do YOU think?” When a person is alone, not in a relationship, they can do what they want; there is no sharing or compromise. I hadn’t thought of that before because I didn’t have to. Now that I am […]
