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Barbara Karnes

They Sit With the Dying: Why Hospice Volunteers Matter

What do hospice volunteers do, and why are they such an important part of end-of-life care?  I’ve worked in hospice for quite a long time. I started out as a hospice volunteer in 1982. It was the very beginning of hospice care in the US. In those days, I volunteered much of my time — I […]

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Why You Need an Advance Directive (Before You Think You Do)

Why You Need an Advance Directive (Before You Think You Do) National Healthcare Decisions Day – April 16 Healthcare decisions are certainly important enough to have their own special day.The sad and unfortunate thing is that most of us don’t even think about them—or realize there are decisions to be made. Generally, we don’t make […]

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Can You Be “Full Code” in Hospice? What Families Need to Understand

Some of you may see this differently—and that’s okay. I’m simply offering another way to think about this subject. I don’t believe that choosing to remain “full code” aligns with the purpose of hospice care. When that is the goal, palliative care may be the more appropriate path. Having hospice teams perform CPR goes against what hospice is […]

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Is It Normal to Feel Angry at Someone Who Died?

Is it normal to feel angry at someone who died? Yes. And for many people, that anger is one of the most confusing parts of grief. Elizabeth Kübler-Ross wrote about the stages of grief—denial, anger, bargaining, depression, and acceptance—but these emotions don’t happen in order, and they don’t come one at a time. It isn’t […]

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Who Cares for the Caregiver in End-of-Life Work?

Those of us working in the end of life profession are not only working in an area generally not talked about, let alone understood, but we are in a field that goes against much of what healthcare professionals are taught.  Healthcare professionals are trained to fix, to do everything possible to keep a person breathing. […]

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Why Does Dying Look So Disturbing?

From the emails I receive, it seems that the three most concerning, upsetting aspects of dying for the watchers are agitation, hallucinations, and the gurgling from excess moisture in the throat and/or back of the mouth. These three areas are very much a part of the dying process. Many dying people have them, it’s just […]

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When Death Is Sudden

Dear Barbara,Is the death process different when a person is killed by violence—such as a gunshot, stabbing, or physical beating—than when death comes suddenly through an accident? In both situations, death is immediate, and the person doesn’t have time to sort through thoughts or see landscapes. Those killed by violence or any other way that […]

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The Quiet Work of Old Age

I debated sending out this blog — it might be a bit scary, too unsettling. Maybe ignorance truly is bliss. So this is your warning! If you are in your late 70’s or above this may be unsettling to read. The circle of life. We are born, we experience, and then we die. We go […]

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Preparing Hospice Volunteers for Intimate Work

Hospice volunteers step into families’ lives at one of the most private moments they will ever experience. Preparing them for this intimate work requires understanding and education. Hospice volunteers are non-medical community members who contribute their time to give support to people and their caregivers as death approaches. They have generally never met the family they […]

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