Dear Barbara, My husband just passed away. He suffered for several years after his diagnosis. He was in and out of the hospital most of this year. He had been on hospice 6 days. This is a version of letters I receive frequently. A person has been diagnosed with a life threatening illness, received various […]
Dying isn’t about the disease a person has. It is about the emotional, communal response to the person dying from the disease. It doesn’t require medical intervention. It requires comfort care and communal guidance. Comfort care is meeting the physical needs—nutrition and knowing when it is okay to stop concentrating on food. Comfort care is […]
Dear Barbara, What is the best way to explain to families/caregivers the “why” behind end of life daily visits? How can I help my nurses increase their compliance visits when they report family refuses visits? An interesting question. I find it hard to imagine families refusing visits. Most are so frightened of the responsibility of […]
Dear Barbara, I am interested in starting a caregiver support group, any ideas? Also, I’ve been hearing a lot about End of Life doulas, can you tell me more and how to become one. The first question I have to ask is, what are your qualifications to run a support group? Just wanting to conduct […]
Someone recently pointed out to me that I seemed overly critical of hospice in an interview on a podcast, that I was “turning my back on hospice.” I want to clarify my thoughts about hospice in today’s environment. Yes, I talk about how understaffed and overworked the existing staff is in many hospices. I am […]
Dear Barbara, I recently found out I am to be the Power of Attorney for my parents (who are in their 80s). I am interested in resource material that can guide me in how to discuss end of life wishes with them. They are healthy. First, there are two kinds of Power of Attorney. One addresses […]
I told my husband, who is having health challenges, that people literally, all over the world, listen to my advice and opinions on living the best you can until you can’t BUT to him, I’m just a wife of 60 years. Since he isn’t listening I’m going to share with you: With gradual dying from […]
Just like hospice regulations were created decades ago, end of life doulas functions are now being formalized. Hospice performs the medical, doulas do not. During a Question and Answer session with a group of end of life doulas I was presented with the question, “Is mouth care at end of life considered medical or comfort care?“ It had never occurred […]
When the doctor says, “We are having a difficult time fixing you;” “I can’t fix you, let’s talk about comfort care;” “We have tried everything and the treatments are not working to eliminate the disease progression;” “I can not give you the quality of living that we were hoping for with the treatments at our disposal;” or “Let’s talk […]
Dear Barbara, My dad is on hospice and the end is approaching. I would like to get guidance on how to plan his celebration of life. He does not attend church and would hate a cold, uncaring service conducted by someone who didn’t know him. Think with your heart. What would be appreciated and […]
