Breaking the stigma of epilepsy
An inspiring conversation with Amee who bravely shares her journey living with epilepsy after hiding her condition for decades due to social stigmas. In this eye-opening interview, Amee discusses the challenges she faced, the triggers she learned to manage, and the treatments that have helped her.
We delve into the stigma surrounding epilepsy and why it’s so important to share our stories. Amee’s candid insights shed light on the reality of living with this condition and encourage others to speak out.
Tune in to learn everything you need to know about epilepsy and the power of openness in breaking down barriers.
Episode timestamps:
0:00 Introduction
2:00 Amee begins discussing her epilepsy diagnosis at age eight
3:33 Explanation of epilepsy and its many presentations
4:48 Amee discusses her treatment with medication and hiding her condition
9:00 Challenges of epilepsy treatment and side effects
18:04 Amee describes how her seizures presents
21:00 Stigma around epilepsy and hiding it from others
26:03 Amee’s decision to share her story online
27:01 Side effects from epilepsy medication
29:05 Hiding her epilepsy and the mental toll of doing so
31:00 Work challenges, career decisions, and epilepsy management
34:08 The importance of Therapy and community support
35:04 Experiences with invisible illness and lack of awareness
37:55 Cultural stigma, sharing stories, and finding resources
43:10 Amee’s goals with her platform “Behind the Bindis”
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#Epilepsy #MentalHealth #Stigma #Inspiration #Awareness #SpreadAwareness
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