This is invisible illness week, and my thoughts about it turned into these words.
——

Every day I do my best
To look ok
So people don’t know I’m sick
Except
I really need some of them to know
That I can barely move most mornings
Because everything hurts
That my meds make me sick
That my hair falls out
That I can’t handle the heat
That I have lesions
In my brain
On my spinal cord
On my liver and
In my lungs
Which means
My memory is bad and
My balance is terrible
Among other things
That my immune system
Has taken a leave of absence
And so every virus finds me
That I have bruises everywhere
That I have 24 doctors and
It’s hard to keep them straight
That I’ve had so many surgeries
I’ve lost track
That the debilitating fatigue means
I’ve suddenly run out of energy
and
I can’t think
Or finish a sentence
Or follow a conversation
Unless I Sleep
Full stop
And it happens
At least twice a day
That my husband’s life has also changed
(He meant his vows and proves it
Over and over again)
That sometimes I have flares
Which make everything worse
And it comes with a whole other
Bag of problems
Like I need more meds
To empty the bag
And the meds make me sick
And I never know
How long it will last
Or what I might lose
And I never know which thing
Is causing how I feel
That I do battle
With insurance companies constantly
That there is so much I’m leaving out.
BUT
What I really need you to know
Is that I’m ok
I’ve made my peace
And each new thing
Just means
“Oh so we’re doing this now!”
I’ve lowered the bar
And it was too high anyway
If I’m chosen by God
(And I am)
If I believe the Bible is true
(And I do)
Then it doesn’t matter how I feel
Because
I am fearfully and
Wonderfully made
All my days were laid out by Him
Before I was even born
And He has promised
That He has good plans for me
A hope and a future
If I choose to believe it
If I choose hope
If I don’t choose Anxiety
If I look for the bright side
(Because there always is one)
If I stay grateful
And
If I choose Jesus
Then I find peace.
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