Imagine going through life without the ability to burp. You might think it’s no big deal but did you know, on average, we burp 10-20 times a day to release the air we take in?
In this episode, Henry shares his life with no-burp syndrome, also known as R-CPD. Henry talks about the physical and social challenges he faced, including countless doctor visits and misdiagnoses, until he finally found relief through an online community that led him to the right treatment.
If you struggle with self-advocacy, this is for you! Henry talks about the importance of standing up for yourself in healthcare. He explains how his persistent research and determination helped him find a doctor who understood his condition and provided the procedure that changed his life. He talks about the balance between trusting medical professionals and doing your research to ensure you get the care you need.
We also touch on the bigger picture of healthcare advocacy and the stigma surrounding invisible conditions.
Henry shares his thoughts on when to seek treatment and the need for society to better understand and support those with invisible disabilities. By sharing stories like Henry’s, we aim to reduce stigma and encourage open and supportive conversations.
This episode is not just informative—it’s an inspiring reminder of the power of perseverance and the importance of being your own advocate.
Takeaways:
No-Burp Syndrome (Retrograde Cricopharyngeus Dysfunction, RCPD) – Defined:
Bio: Henry L is a father and husband with two sons, and he is also the owner of a Golden Doodle.
In his spare time, he enjoys spending time with family and friends, observing nature, and playing sports. On days wh
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