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January 21st, 2025

16 I Caregiving & Family Pt 1: What It's Really Like To Receive Long-Term Care When You Have a Disability

  1. 16 I Caregiving & Family Pt 1: What It's Really Like To Receive Long-Term Care When You Have a Disability Feelings & Co 46:54

In this episode we meet Kathleen Downes- a 31-year-old woman who lives with her parents and dog in New York. Kathleen has cerebral palsy, which means she needs constant care to do daily activities. Kathleen talks about the complicated relationship between care recipients and their families, the broken policies that force impossible choices, and the radical act of finding joy despite a system designed for isolation. 

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The episode transcript can be found here. 

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Connect with us: 

EMAIL: hello@refamulating.com. 

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Our team 

Host: Julia Winston

Producer: Claire McInerny 

Audio Engineer: Josh Gilbert

Theme Music: Luke Top

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We are a member of the Feelings and Co network. 

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Refamulating is a podcast that explores all the ways to make a family. Most people in America don't live in a nuclear family anymore, and we explore what that looks like one family at a time.

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