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Caregiving Youth: A Powerful Voice from the Next Generation

  1. Caregiving Youth: A Powerful Voice from the Next Generation Natalie Elliott Handy and JJ Elliott Hill 49:18

At just 18 years old, Kaylin Jean-Louis has already taken on the immense responsibility of caring for her grandmother with Alzheimer's disease. Her story is a powerful testament to the resilience and Wisdom of caregiving youth, hidden in plain sight. From a young age, Kaylin has navigated the challenges of her grandmother's declining health, helping her mother with daily routines and advocating for her needs at school. Despite the difficulties, Kaylin has found solace in her passions, such as marching band, which provided a much-needed safe space to express herself.

Kaylin's caregiving journey has not only shaped her personal Growth but has also inspired those around her. She has openly shared her experiences with her peers, breaking down the stigma and isolation often faced by young caregivers. Kaylin's willingness to be vulnerable and her desire to support others in similar situations have created a ripple effect, connecting her with like-minded individuals eager to learn and lend a helping hand.

At the heart of Kaylin's story is the deep-rooted family values that have been passed down through generations. Her grandmother's example of selfless service and compassion has instilled in Kaylin a profound sense of purpose, driving her to aspire to inspire others. As Kaylin continues to navigate the complexities of caregiving, her unwavering spirit and determination serve as a beacon of hope for young people facing similar challenges. Her story is a testament to the power of resilience, empathy, and the transformative impact that caregiving can have on one's life.

About Kaylin:

Kaylin Jean-Louis is not just an 18-year-old third-year Broadcast Journalism scholar from Tallahassee, Florida. She is a dynamic force for positive change, embodying the spirit of compassion and service in everything she does. With a humble yet powerful mantra, “I don't want to be famous, I just want to make a difference in people's lives,” Kaylin is making an indelible impact on her community and beyond.

Born and raised in Tallahassee, Kaylin discovered her passion early. She founded Kaylin's Caring Konnection, Inc., and the Youth Care Too! Movement, advocating for young caregivers.

Kaylin hosts “Inspiring Moments with Kaylin” on Hallelujah 95.3 FM and “Feel Good Vibes & Motivation” on 90.5 The Flava. Her ultimate goal is to inspire future generations to unlock their full potential and become award-winning multimedia journalists who empower others.

The sisters proudly partner with the Caregiver Action Network. CAN's Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am – 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.

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JJ Elliott Hill Confessions of a Reluctant Caregiver

Known since childhood as “The Elliott Girls” or simply, “The Girls”, it makes sense that we work together to support our mother, and each other. Our trio begins with Jenefer Jane “JJ” who was and always will be “in charge”. She’s the peacekeeper. The responsible one, ensuring Natalie and Emilie remain alive. Next is Natalie, the middle child, who was and always will be Miss Congeniality. She’s the athlete. The rebel responsible for three babysitters exiting the summer of ’84. Then there is Emilie, the youngest, who was and always will be “the baby”. At 6’1”, she is the sensitive and quiet soul. The one responsible for the guinea pig that begged for lettuce and the stray dog we adopted from the bus stop.

After high school we went separate ways, from New Mexico to North Carolina. JJ would go on to get her Master’s in Business Administration and work in the finance world before partnering with her now husband, Dexter, to run a variety of businesses. Natalie would go on to get her Master’s in Social Work degree, and work in the mental health field, advocating for children and families to receive the most appropriate services. Natalie would marry and divorce early on but later marry Jason. Emilie would exit college early to marry and gift us with Owen and twins, Maxx and Natalie Jane aka “The Kids”. Emilie would later divorce and work with county government, focusing much time on caring for the kids.

The source of the sisterhood falls to Jim aka “Big Jim” and Connie, small town high school sweethearts married for almost 40 years.

In 2005, at the age of 52, mom would be diagnosed with Parkinson’s Disease. She hid the disease for years behind dad’s 6’2” frame. The tremors and sudden inability to move were both calmed and steadied by his arm and simple presence. He was her rock. Our rock. Close family and friends knew of her chronic illness, but to the rest of the world, everything was “fine”. Life would turn upside down when our dad unexpectedly passed in 2011 of a massive heart attack at the age of 58. The assumption was Dad would always be mom’s caregiver but that wasn’t God’s plan.

Mom would spend the years following our father’s death desperately seeking a cure for Parkinson’s while trying to manage her symptoms. As the years went by, the cruel symptoms associated with the disease increased, negatively impacting her body while her mind remained clear and in tune. We lived our lives checking in to make sure she was “okay” but knowing the day would come when we had to do more. And then it did. The summer of 2019 changed everything. That’s where the real caregiver story begins for us. Little did we know she would be only the beginning of our caregiving journey.

In March 2022, Natalie’s husband, Jason, was diagnosed with head and neck cancer. From the first time Jason detected something off about the swollen lymph nodes in his neck, to the formal diagnosis, and the decision to move to New York City to participate in a clinical trial at Memorial Sloan Kettering Cancer Center, the journey would push them to their limits. The silver lining of his diagnosis was the cancer brought them closer to God, restoring their faith in Him while also experiencing a myriad of blessings through the kindness of family, friends, and strangers. Their story is a testimony that will inspire and offer hope.

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