When it comes to Caregiving we often think about Caregiving for a spouse, partner, parent or grandparent. But what if you happen to be a kid who is caring for a parent with ALS (Lou Gehrig’s disease)? Through the loss of her husband Kevin to ALS, Jodi O’Donnell-Ames created Hope Loves Company where kids and families dealing with ALS can find strength, comfort and compassion. Listen in and learn hour Jodi O’Donnell-Ames is creating Healing Ties all around us!
You Might Know Me As The Bow Tie Guy - "Wearing a bow tie is like wearing two smiles."
When people ask me, "why did you create the Whole Care Network"... I always come back to our caregiving experience and how fortunate I was to find resources that helped me and my partner Richard Schiffer manage our caregiving journey. Every caregiver has a story; through our stories, we find validation, resources, and respite to help manage our caregiving day.
We were fortunate to have our story chronicled in a 2015 Pulitzer Prize-nominated 3-part story, “In Sickness and In Health: A Couple’s Final Journey,” which told our journey of caregiving. The story told of the challenges LGBT partners have in dealing with the medical and legal system, but it also told of the love and joy my partner Richard's last years had on our relationship.
