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January 18th, 2017

Finding Love In The Land Of Dementia

  1. Finding Love In The Land Of Dementia Christopher MacLellan "The Bow Tie Guy" on the Whole Care Network 31:47

Deborah Shouse is an author and dementia advocate. Deborah knows first hand that finding the connection with a love one afflicted with dementia is a challenge millions of people face. Too often, people living with dementia are entertained instead of engaged. Listen in and learn how Deborah is creating “Healing Ties” all around us by finding love in the land of dementia.

You Might Know Me As The Bow Tie Guy - "Wearing a bow tie is like wearing two smiles."

When people ask me, "why did you create the Whole Care Network"... I always come back to our caregiving experience and how fortunate I was to find resources that helped me and my partner Richard Schiffer manage our caregiving journey. Every caregiver has a story; through our stories, we find validation, resources, and respite to help manage our caregiving day.

We were fortunate to have our story chronicled in a 2015 Pulitzer Prize-nominated 3-part story, “In Sickness and In Health: A Couple’s Final Journey,” which told our journey of caregiving. The story told of the challenges LGBT partners have in dealing with the medical and legal system, but it also told of the love and joy my partner Richard's last years had on our relationship.