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July 11th, 2018

When I Die and Living in the Light

  1. When I Die and Living in the Light Christopher MacLellan "The Bow Tie Guy" on the Whole Care Network 28:05

On episode 5 of “Songs For The Caregiver Soul” Barbara McAfee introduces to two songs that continue us on the path of self thought and self-enrichment. When I Die and Living in the Light are two very personal songs that talk about a taboo subject, our own death. Or is our own death a taboo subject? Could you write your own death song? While the topic matter might seems out of sorts, after you listen to these two wonderful songs, you’ll learn about the bond between two friends and how music brings healing, even in the most difficult of times. Listen in and learn how Barbara McAfee and the Morning Star Singers are creating Healing Ties all around us!

You Might Know Me As The Bow Tie Guy - "Wearing a bow tie is like wearing two smiles."

When people ask me, "why did you create the Whole Care Network"... I always come back to our caregiving experience and how fortunate I was to find resources that helped me and my partner Richard Schiffer manage our caregiving journey. Every caregiver has a story; through our stories, we find validation, resources, and respite to help manage our caregiving day.

We were fortunate to have our story chronicled in a 2015 Pulitzer Prize-nominated 3-part story, “In Sickness and In Health: A Couple’s Final Journey,” which told our journey of caregiving. The story told of the challenges LGBT partners have in dealing with the medical and legal system, but it also told of the love and joy my partner Richard's last years had on our relationship.