Managing Sickle Cell Disease
Sickle cell disease is a rare, debilitating, life-threatening blood disorder that is unfortunately difficult to treat. Although it is difficult to treat, there are preventive measures that can make patients feel better. Additionally, doctors can identify patients with a high risk of dangerous strokes. Sadly, many children with sickle cell disease do not receive the recommended preventive measures. Managing sickle cell disease involves understanding the disease and steps to take to reduce the risk of serious complications.
Continue reading Managing Sickle Cell Disease at ZaggoCare.
I started Zaggo, a nonprofit organization, to help patients and family caregivers manage illnesses and injuries, after caring for my teenage son Zachary during his 27-month battle with terminal brain cancer. My caregiving experience led to a passion for helping patients and family caregivers be engaged, empowered members of their medical teams to help them get the best healthcare and outcomes possible.
I have won several awards for my work, including a recent "Visionary Award" from Caregiving.com, and a "Website of the Year Caring Award" from Caregiving Years Training Academy.
