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Living with FTD W/Janice Swink – Part 2

  1. Living with FTD W/Janice Swink – Part 2 Alzheimer's Caregivers 54:16

Understanding what living with dementia is like is beneficial for all of us.  In this part 2 episode with Janice Swink, we continue our conversation about her life and struggles.  Janice is living with frontal temporal dementia. At the time of our conversation, it was thought that she may also have Lewy Body syndrome. Her recent MRI has proven that not to be the case.

Having only one dementia is still a challenge, however. Janice has scent and visual hallucinations along with good days and bad. Posting on her Facebook and Twitter Janice helps us understand what good days and bad look like.

Using her situation to teach people what it’s like to live with dementia is Janice’s purpose now. Using herself as a teaching tool allows her to help fight the stigma attached to a brain disease we cannot see. Janice has dealt with a lot of subtle bullying but is determined to do her part to change the world.

Recently Janice posted “LIVING WITH DEMENTIA: Have had trouble the last two mornings trying to figure out how to put my coat on and neck scarf. Hopefully, this is not a new normal for me. Hugs to all!” This is inspiring because too many people with Alzheimer’s or dementia go into denial. They don’t talk about what’s going on with them, depriving friends and Family a much-needed understanding.

To sum up our conversation I would say that Janice is doing a great job helping the world understand living with dementia. Listening to this episode will greatly improve your understanding of the Dying mind and help reduce frustrations.

Living With Dementia Part 1.

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Jennifer is also available for speaking engagements.

After helping care for her grandmother who had vascular dementia, Jennifer realized her Mother was showing signs of early onset Alzheimer’s. After the death of her father in 2017 Jennifer went searching for answers to many of the common questions and Alzheimer’s caregiver faces. Being a busy entrepreneur Jennifer realized that a podcast would be the easiest way to learn more about caregiving while completing other tasks.

Sadly, in late 2017 she only found one and it didn’t quite address what she was looking for, so she did the next best thing, and started her own. The Fading Memories podcast is now in it’s fourth year and despite the death of her Mom in March 2020, Jennifer is still talking to caregivers and still learning how to be an excellent caregiver. On the podcast she discusses caregiving, brain health, self-care and how to age well.