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July 12th, 2021

The Waiting Room Revolution

  1. The Waiting Room Revolution Whole Care Network 49:59

Dr. Hsien Seow and Dr. Samantha Winemaker have worked their entire careers helping those who are facing serious illnesses.

For years, they often heard patients and families say they felt unprepared and overwhelmed.

Despite years of Education, research, and advocacy, they continued to hear patients and families say “Why didn’t anyone tell me that sooner…”

They started the Waiting Room Revolution movement because they wanted to improve the patient and family illness experience.

They wanted to educate …and build a community to share deeply human stories about caring for others.  Because Palliative care shouldn’t be a scary word.

Listen in and learn how Hsien and Sammy are creating Healing Ties all around us!

You Might Know Me As The Bow Tie Guy - "Wearing a bow tie is like wearing two smiles."

When people ask me, "why did you create the Whole Care Network"... I always come back to our caregiving experience and how fortunate I was to find resources that helped me and my partner Richard Schiffer manage our caregiving journey. Every caregiver has a story; through our stories, we find validation, resources, and respite to help manage our caregiving day.

We were fortunate to have our story chronicled in a 2015 Pulitzer Prize-nominated 3-part story, “In Sickness and In Health: A Couple’s Final Journey,” which told our journey of caregiving. The story told of the challenges LGBT partners have in dealing with the medical and legal system, but it also told of the love and joy my partner Richard's last years had on our relationship.

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