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Forever Caregiver: The Lucas Project & Life Beyond Loss

  1. Forever Caregiver: The Lucas Project & Life Beyond Loss Natalie Elliott Handy and JJ Elliott Hill 52:26

“I became a forever parent caregiver.” – Jesse Ronne

What happens when Caregiving, loss, and Love collide? Jess Ronnie, writer, speaker, podcaster, and founder of The Lucas Project, brings her powerful story to the mic, offering a moving look into Parenting a child with special needs, enduring Grief, and building a future rooted in compassion and advocacy.

Jess opens up about the emotional and physical toll of raising her son Lucas, who has profound special needs, while managing life as a “forever caregiver” and navigating the heartbreak of losing her husband, Jason. She shares the raw realities of caregiving, the denial that can come with special needs diagnoses, and the heavy yet hopeful journey toward acceptance, remarriage, and healing.

This episode is a powerful reminder that caregivers are not alone. Jess discusses:

  • Surviving as a parent in crisis mode
  • Rebuilding identity after caregiving takes over
  • Balancing love and loss in blended families
  • The critical importance of support systems and community
  • How her nonprofit, The Lucas Project, is creating change for caregivers across the country

About Jesse:

Jess Ronne is an author, speaker, podcast host at Coffee with Caregivers, associate producer of the Unseen Documentary, and caregiver advocate. She is founder and executive director of The Lucas Project, a non-profit dedicated to providing recognition, resources and respite support for special needs families. She and her husband Ryan live in Michigan with their 8 children, including their son Lucas who has profound disabilities. Her story of beauty from ashes has been shared on The Today Show, Daily Mail and Huffington Post and is detailed in her memoir Sunlight Burning at Midnight. To follow the ongoing saga she can be found at www.jessplusthemess.com or purchase her latest books Blended with Grit & Grace, Lovin’ with Grit & Grace, and Caregiving with Grit & Grace.

Social Media

Facebook: www.facebook.com/jessronneofficial

Website: www.caregiverdoc.com

Website: www.thelucasproject.org

Website: www.jessronne.com

Thank you to sponsor: CareScout

Learn more about Confessions of a Reluctant Caregiver

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JJ Elliott Hill Confessions of a Reluctant Caregiver

Known since childhood as “The Elliott Girls” or simply, “The Girls”, it makes sense that we work together to support our mother, and each other. Our trio begins with Jenefer Jane “JJ” who was and always will be “in charge”. She’s the peacekeeper. The responsible one, ensuring Natalie and Emilie remain alive. Next is Natalie, the middle child, who was and always will be Miss Congeniality. She’s the athlete. The rebel responsible for three babysitters exiting the summer of ’84. Then there is Emilie, the youngest, who was and always will be “the baby”. At 6’1”, she is the sensitive and quiet soul. The one responsible for the guinea pig that begged for lettuce and the stray dog we adopted from the bus stop.

After high school we went separate ways, from New Mexico to North Carolina. JJ would go on to get her Master’s in Business Administration and work in the finance world before partnering with her now husband, Dexter, to run a variety of businesses. Natalie would go on to get her Master’s in Social Work degree, and work in the mental health field, advocating for children and families to receive the most appropriate services. Natalie would marry and divorce early on but later marry Jason. Emilie would exit college early to marry and gift us with Owen and twins, Maxx and Natalie Jane aka “The Kids”. Emilie would later divorce and work with county government, focusing much time on caring for the kids.

The source of the sisterhood falls to Jim aka “Big Jim” and Connie, small town high school sweethearts married for almost 40 years.

In 2005, at the age of 52, mom would be diagnosed with Parkinson’s Disease. She hid the disease for years behind dad’s 6’2” frame. The tremors and sudden inability to move were both calmed and steadied by his arm and simple presence. He was her rock. Our rock. Close family and friends knew of her chronic illness, but to the rest of the world, everything was “fine”. Life would turn upside down when our dad unexpectedly passed in 2011 of a massive heart attack at the age of 58. The assumption was Dad would always be mom’s caregiver but that wasn’t God’s plan.

Mom would spend the years following our father’s death desperately seeking a cure for Parkinson’s while trying to manage her symptoms. As the years went by, the cruel symptoms associated with the disease increased, negatively impacting her body while her mind remained clear and in tune. We lived our lives checking in to make sure she was “okay” but knowing the day would come when we had to do more. And then it did. The summer of 2019 changed everything. That’s where the real caregiver story begins for us. Little did we know she would be only the beginning of our caregiving journey.

In March 2022, Natalie’s husband, Jason, was diagnosed with head and neck cancer. From the first time Jason detected something off about the swollen lymph nodes in his neck, to the formal diagnosis, and the decision to move to New York City to participate in a clinical trial at Memorial Sloan Kettering Cancer Center, the journey would push them to their limits. The silver lining of his diagnosis was the cancer brought them closer to God, restoring their faith in Him while also experiencing a myriad of blessings through the kindness of family, friends, and strangers. Their story is a testimony that will inspire and offer hope.