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December 15th, 2024

MARTIN J. SCHREIBER: My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver

  1. MARTIN J. SCHREIBER: My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver Susie Singer Carter and Don Priess 1:08:35

What better way to celebrate our 100th episode than with an interview that truly reflects the definition and the title of our show: Love Conquers Alz. Former Wisconsin Gov. Martin J. Schreiber is an award-winning crusader for Alzheimer's caregivers and persons with dementia and author of the best selling novel, My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver.

Since 2016, Marty has been campaigning unlike anything he experienced while in office. Rather than seeking votes, Marty now works to recognize and support Alzheimer’s caregivers – an unpaid workforce that now exceeds 16 million people nationwide. Schreiber's goal for caregivers (whom he calls heroes) is that they learn, cope, survive and even thrive during their difficult journey. All things that Marty learned caring for his beloved wife, Elaine.

Imagine your spouse falling in love with you over and over again. Romantic, right?  But what if they kept falling in love with you because every morning they woke up they’d forget who you were?  The love story of Marty and his wife Elaine that began in the 1950s when they were high school freshmen began to take the cruelest of twists when Elaine, diagnosed with Alzheimer's, gradually transformed from the woman who had gracefully entertained in the Executive Residence to one who sometimes no longer recognized Marty as her husband.  Yet, the two still found moments of joy which Marty lovingly talks about in his acclaimed My Two Elaines.

We share insights from “My Two Elaines,” a poignant memoir that highlights the emotional journey from partner to caregiver, offering practical advice on therapeutic fibbing and redirection. The episode underscores the importance of male caregivers seeking help and stepping away from outdated stereotypes, as we discuss the necessity of systemic reform in care facilities.

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Susie Singer Carter Love Conquers Alz Podcast

Susie Singer Carter is a multi-award-winning writer, director, producer, actor, podcast producer, and host. A versatile filmmaker, Susie is best known for writing, directing, and producing the 2018 Oscar Qualified short film, MY MOM AND THE GIRL starring Valerie, writing and producing BRATZ THE MOVIE for Lionsgate, and co-producing SOUL SURFER for Sony. During a 3-script blind deal at Fox TV, Susie wrote, produced, and directed SURVIVING HAWKING, an adult animated pilot starring Brian Cranston and Adam Brody.

In the spring of 2024, Susie will direct the screenplay, RUN, a dramedy that she adapted from the book PLAIN JANE. Ms. Singer Carter also produces and hosts the podcast LOVE CONQUERS ALZ (BEST PODCAST 2020 New Media Film Festival/#4 on Feedspots’ 2023 25 Best Alzheimer’s Podcasts). Susie is also the co-creator, co-writer, and director of the horror/comedy narrative podcast I LOVE LUCIFER nominated for Best Audio Fiction 2023 Indie Series Awards.

Currently, Susie is producing the docu-series, NO COUNTRY FOR OLD PEOPLE, critically needed documentary inspired award-winning filmmaker, Susie Singer Carter's (Oscar Qualified “My Mom and The Girl” starring Valerie Harper, Soul Surfer) experience tackling the front lines of our broken Long Term Care/Nursing Home System while caring for her beloved mother who, despite best efforts, died July 17, 2022 from what was inarguably egregious nursing home neglect and abuse.

Susie really understands the power of storytelling. This film promises to pack a much-needed gut punch that will force the public to look at our health-care system that is literally collapsing around us. Susie has partnered with former US Prosecutor and Attorney General, Rick Mountcastle (portrayed in the Hulu miniseries, “DOPESICK”), who spent years investigating and prosecuting nursing homes chains for fraud. She has attracted an impressive list of the most respected and staunch advocates to contribute to the film. She and her partners are currently raising the remainder of the budget to finish the project. They are fiscally sponsored by The National Consumer Voice for Quality Long Term Care which provides them a 501(c)(3) status. Tax-deductible donations can be made here: http://act.theconsumervoice.org/documentary

Susie is a sought-after speaker and has appeared in many Alzheimer’s awareness campaigns for Alzheimer’s Los Angeles. She proudly emceed the 2022 San Fernando Valley Alzheimer's Walk and hosts the WGA’s 3rd & Fairfax Podcast.

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