Ramoeli was born in Lesotho, a country encircled by South Africa, and lives with Ehlers-Danlos syndromes and many other comorbid conditions. This young woman relentlessly fights for improved access to Health care for rare disease patients in her home country and shares the story of her path to the diagnosis of EDS diagnosis in the context of a place where healthcare resources cannot be taken for granted. She established an NGO to help all rare disease patients in Lesotho.
Moyez Jiwa is a general practitioner, journal editor and podcast host. Professor Jiwa leads a medical school based in Melbourne, Australia. He authored the book The Art of Doctoring. He believes that healthcare can improve by focusing on the quality of the meeting between health care professional and patient. This would forge a truly meaningful partnership between doctor and patient as co-pilot in care. It would also reduce rates of burnout among doctors and future proof healthcare in a world where the population is ageing and more likely to be living with more complex health care conditions.
