Chris MacLellan is an inspiring figure in the world of Caregiving. After caring for his partner, Richard, during his battle with a terminal illness, Chris was inspired to establish the Whole Care Network. In this place, caregivers can find support, connection, and understanding. With a strong background in social work and senior care, Chris is well-versed in the challenges caregivers face daily. He's also the author of “What's The Deal With Caregiving?” which tackles the different stages of caregiving. Chris will share how humor and positivity can help caregivers through difficult times, providing much-needed encouragement and guidance.
Chris, a former caregiver and social worker, found solace in the power of positivity and humor while caring for his late partner, Richard, who battled esophageal Cancer. Chris and Richard's connection was strong, and they navigated the challenges of caregiving together. Maintaining open and honest conversations built a foundation of support and understanding, allowing them to find pockets of joy amidst their trials.
In this episode, you will:
- Gain practical self-care strategies for caregivers to ensure mental and physical well-being.
- Uncover innovative ways for caregivers to communicate effectively with doctors.
- Discover the power of positivity and humor in overcoming the hurdles of caregiving.
- Learn how to create valuable support networks for caregivers online and offline.
- Embrace the importance of establishing trust in caregiving Relationships through finding your unique “why.”
About Chris:
Christopher MacLellan is affectionally known as the Bow Tie Guy in the vast network of Family caregivers and is the founder and CEO of the Whole Care Network. Chris and his now-deceased partner were featured in a 2015 Pulitzer Prize-nominated story entitled “In Sickness and in Health: A Couple’s Final Journey,” which propelled him to write his book “What's The Deal with Caregiving and develop the Whole Care Network. The motto at the Whole Care Network is “helping you tell your story, one podcast at a time” because it is through story sharing where diversity meets the road to collaborate on a common cause, and our common cause is to supports caregivers, before, during and after caregiving ends. Now, Chris is Aging Gayfully!
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Known since childhood as “The Elliott Girls” or simply, “The Girls”, it makes sense that we work together to support our mother, and each other. Our trio begins with Jenefer Jane “JJ” who was and always will be “in charge”. She’s the peacekeeper. The responsible one, ensuring Natalie and Emilie remain alive. Next is Natalie, the middle child, who was and always will be Miss Congeniality. She’s the athlete. The rebel responsible for three babysitters exiting the summer of ’84. Then there is Emilie, the youngest, who was and always will be “the baby”. At 6’1”, she is the sensitive and quiet soul. The one responsible for the guinea pig that begged for lettuce and the stray dog we adopted from the bus stop.
After high school we went separate ways, from New Mexico to North Carolina. JJ would go on to get her Master’s in Business Administration and work in the finance world before partnering with her now husband, Dexter, to run a variety of businesses. Natalie would go on to get her Master’s in Social Work degree, and work in the mental health field, advocating for children and families to receive the most appropriate services. Natalie would marry and divorce early on but later marry Jason. Emilie would exit college early to marry and gift us with Owen and twins, Maxx and Natalie Jane aka “The Kids”. Emilie would later divorce and work with county government, focusing much time on caring for the kids.
The source of the sisterhood falls to Jim aka “Big Jim” and Connie, small town high school sweethearts married for almost 40 years.
In 2005, at the age of 52, mom would be diagnosed with Parkinson’s Disease. She hid the disease for years behind dad’s 6’2” frame. The tremors and sudden inability to move were both calmed and steadied by his arm and simple presence. He was her rock. Our rock. Close family and friends knew of her chronic illness, but to the rest of the world, everything was “fine”. Life would turn upside down when our dad unexpectedly passed in 2011 of a massive heart attack at the age of 58. The assumption was Dad would always be mom’s caregiver but that wasn’t God’s plan.
Mom would spend the years following our father’s death desperately seeking a cure for Parkinson’s while trying to manage her symptoms. As the years went by, the cruel symptoms associated with the disease increased, negatively impacting her body while her mind remained clear and in tune. We lived our lives checking in to make sure she was “okay” but knowing the day would come when we had to do more. And then it did. The summer of 2019 changed everything. That’s where the real caregiver story begins for us. Little did we know she would be only the beginning of our caregiving journey.
In March 2022, Natalie’s husband, Jason, was diagnosed with head and neck cancer. From the first time Jason detected something off about the swollen lymph nodes in his neck, to the formal diagnosis, and the decision to move to New York City to participate in a clinical trial at Memorial Sloan Kettering Cancer Center, the journey would push them to their limits. The silver lining of his diagnosis was the cancer brought them closer to God, restoring their faith in Him while also experiencing a myriad of blessings through the kindness of family, friends, and strangers. Their story is a testimony that will inspire and offer hope.